sciatic pain and endo

[Rachel20]

Had gynea appointment and mentioned my sciatic pain which is dreadful , before and during my menstral cycle.I was told this is not attributed atall to endo.And it was a mystery treally why this is a symptom and to go to phsio.Anyone been told this or had any sciatic pain beforeand after menstration

Thhank you

[Lindle]

Is it one side more than the other?

[Rachel20 in reply to Lindle]

yes on the left.but i only get sciatic just before and during menstration.Never at any other times...

[Doglover5]

I’ve always been told my sciatica isn’t related but it went away after my lap and during pregnancy. Since my other endo symptoms have returned so has that! It’s like a constant nagging pain right at bottom of the back and down my leg. Always worse during period and ovulation. I know it’s 100% related.

[Rachel20 in reply to Doglover5]

thank you for your reply..i agree.why does it only happen during menstation.its been happening for 14yrs.Didnt feel as if anything was taken to the degree that i feel it at my appointment.

[Klom81]

yes I do, although this has eased whilst being on Prostap injections. My gynaecologist said it was definitely Endo related and was due to my Endo being so close to the sciatic nerve

[Avourneen]

The gynae you saw must be very poor. Sciatic pain is frequently caused by endo on the ligamnets and endo actually growing on the sciatic nerves. If the sciatica comes and goes with your period it is probably that that is causing it. An endo specialist gynae should know this as it is quite common (I had it my gynae told me immediately that could be what was causing the pain, they operated and it was). You need a good surgeon to treat this.

If I were you I would try to find a better gynae. if this person doesn't know as much about endo as a normal endo patient he/she probably can't be very good. Having surgery with a gynae who isn't very good is a very bad idea. I'm so sorry that you have seena gynae who has so little knowledge, try to look up a real endo specialist onlline and get a referral to them instead.

[Rachel20 in reply to Avourneen]

thanks for your reply. mentioned the sciatica first and was told that.So straight waway i felt on the back foot.I I dont think i. got across what immense pain im in.Was asked if inget a dull ache i pelvis i said yes and dragging pains sharp stabbing pains.Asked something else and forgot to say about the immense cramping pains that make me sick.Though i did mention gettting sick later.feel like i shouldnt of mentioned the sciatica first but this is the first symptom that comes on before my menstral cycle.I said how heavy my periods were and the clots aswell.Was tod am not anemic so im not loosing that much and my clots arent big enough as they said they treat people who are loosing fist full of clots.Nothing showed up on my scan.Apart from very gassing and i think small polp that said was normal it just shows im ovulating.And also showed very gassy on ultrasound.Have digestive issues all the timeHad an internal and she said everything was fine.Doesnt think i have endo because of my symtpoms.I just didnt get across how dibilitating the pain is.Was told maybe its just how i am.Dont get me wrong i dont want endo but i really dont think i got across how bad this really is.And dont think mentioning sciatic pain at the start helped me..

[Rock-Cat]

I could barely walk my pain was that bad. When they did laparoscopy and excision I was informed my Endometriosis was around my sciatic nerve. The pain was definitely related to the endo not anything else and I'm now like a new person now the endo has been removed.

[Rachel20 in reply to Rock-Cat]

i havethe same everytime i am on a period.Cant walk properly and that pain mixed with pelvic pain is dibilitating.As soon as i mentioned the sciatic at the start i think it may of ruled out endo for my gyne.Said it was not related atall.Gyne seemed quit

[Cher34]

Hi hope you're as well as can be.

Around menstruation literally everything flares up for me. I have been told it can be due to the inflammation caused in which depending where abouts your sciatic nerve is being trapped, of course it can have an affect. Also if in an endo flare how you're sitting could also cause some irratation to the nerve.

[Rachel20 in reply to Cher34]

thank you for your kindness.I was very suprised in the appointment actually and wish i hadnt of mentioned it now..but you can only tell the truth.I have heard now many woman do get this and have to have surgery for it on there sciatic nerve.It kind of threw me when it was compketely dismissed as having anything to do with endo...thank you for your kind

[Cher34 in reply to Rachel20]

I also have chronic Pancreatitis which also flares worst around menstruation (also dismissed by a male consultant). However many other women seem to all have that issue too. The problem is they're just isn't enough research/funding into the links for womens health.

[Strongspirit7]

Hi, I experience sciatic pain in my back and leg sometimes. The pain in my hips can be so uncomfortable sometimes you don't know whether to sit or move around. I do feel for you as it is extremely uncomfortable. Kindest thoughts

[Rachel20 in reply to Strongspirit7]

so many women saying thr opposite here.I havent had very got experience with anyone regarding this.I have coped with all this for 17yrs now and really do feel like just giving up at this point and just coping with it like i have been for so very long.The gyne said maybe this is just how i am..but it isnt normal.It dibilitating pain...thank you for your kindness its much appreciated

[Strongspirit7 in reply to Rachel20]

You are right to enquire about symptoms you are experiencing and it's not ok to just cope with extreme pain. Don't give up! You have coped so well for so long I hope you get some help.

[Endodiaries]

Yes, I have been getting bad sciatic pain onthe lefta hand side and pain in my pelvis, I'm sure that this is another developement of my endometriosis problem.

[Rachel20 in reply to Endodiaries]

such a shame that gyne can say and think differently regarding endo.When so many women on here obviously recognise sciatic symptoms with endo.