My doctor really suspects that I have endometriosis... (sprry its so long!!)
I know that i've had long, painful, heavy periods for as long as i can remember, with large clots (sorry! tmi!). But i never really thought much of it. All my friends said that they had bad cramps, so I just thought it was normal. I remember a few years ago though, I started experiencing pain when I went poo on my period and I brought it up to my doctor, she said that my uterus probably sat a bit closer to my bowel, causing the pain and my fibromyalgia probably made me more sensitive to the pain, so i sort of just dealt with the pain as a regular part of my period.
I remember though, August of last year I was working at camp and was having a shower when all of the sudden I had very sharp, pulling cramps. I had never had cramps like this before so I remember this day. I remember feeling out of breath and unsteady in the shower, holding back whimpers of pain. The next month, I had the same thing, I was on the bus on my way to school and suddenly got very bad cramps, I was squeezing my backpack, hot and sweaty and feeling out of breath. That day I went to get my nails down and when I stood up, my period just gushed out, completely going threw my underwear and soaking my jeans (sorry tmi again!) After this, my periods were heavier with large clots, but I remembered my doctor saying clots were normal so i thought i was just having a heavy period or something. I also was experiencing pain when I peed and my bum pain was worsening, I had to hold on to the wall when i pooped because it felt like someone was stabbing me, and I couldn't sit on my bum when I was on my period because it was so tender and so sore and I would get stabbing pains.
In June, my period cramps were so painful, they brought me to the ground in the kitchen, very sharp cramps and a pulling cramping feeling in my thighs. a few weeks later I got home from work and had a sharp pain in my side, I thought it was a gas bubble because ive had those before. I tried a few excersices to get things moving around, but it was too painful, I tried to go to the bathroom but nothing would come out, I was bent over in pain, if i stood up properly, it felt like something inside me was ripping. I went to work the next day serving and would get sharp pains but thought it was just gas, i also noticed that I really had to pee but when I went only a small amount came out. Around dinner time I noticed that i had been sweating alot more than usual and was feeling very hot, the pain was very sharp and made it difficult to walk, again i was feeling short of breath because the pain was so bad, I was nauseous and about to puik but nothing came out. I only went to the walk in because people at work told me to, I was convinced that it was just gas and wasn't excited about a doctor telling me I was just constipated (i have irritable bowl). The doctor saw me and said that she thought it was a bladder infection (they did a urine sample) but it could be my appendix because it was on the right side. Even as the appointment was going on, I could feel the pain growing and getting worst, by the time I was paying for my prescription I was crying.
The doctor told me if the pain got worst to go to the hospital, I had to wait for my dad to come pick me up and even in the short car ride, the pain was increasing so we went to the hospital, because I remember thinking if this was gas, there had to be a reason why it was so bad. The pain started in the right side and after a few hours went to the middle and the left side (near my ovaries and belly button). After an ultrasound and MRI, the doctor came in and said that they couldn't see anything but she suspected that I had a ruptured ovarian cyst and that the blood and fluid were irritating my other organs. They gave me morphine (which barely helped with pain) and send me some with 2 morphine and prescription for Neproxin.
I had pain in my left side now for a few weeks. Next period, I had very shap painful cramps again but worst than cramps I had experienced and the pain in my bum was unbearable so I tried a morphine but it didnt help at all. I went to the walk in and the doctor said I may have another cyst and to take the neproxin.
Few weeks later (when I was ovulating) I had a sharp pain in my left side, similar to the pain I had on the right side (where I had the ruptured cyst). I went to lie down and suddenly, I got an intense almost wave of pain, feeling like it was in my bowl, and it just kept growing and growing, and I had a stabbing pain in my bum, couldn't sit on it. I was sweaty and my heart was racing. I went to urgent care (heart rate was at 135 bpm) I got a blood test and they took a urine sample. It was difficult to stand up completely, because again it felt with something was pulling and ripping inside of me and my bum hurt so bad I couldn't sit on it, i was crying in pain. I waited 5 hours for the doctor to see me and ofcourse by this time, my pain had subsided. The doctor walked in and said that I didnt look sick (which hurt me and made me feel stupid for going to the doctor) and said that maybe scar tissue from my previous cyst had caused my bowl to twist which can be extremely painful, however he did no diagnostic testing.
I had to wait a month to see my doctor because her schedule was so full. i saw her this week and she suspects that I have endometriosis and has put me on birth control (which i'm yet to start, because you have to wait until the first day of your period. Now my doctor told me that the thing that makes her suspect it is that the pain comes with my period. I've looked up endometriosis and was wondering if endo can also hurt when you are not on your period? I'm noticing this month that I am feeling very tender and getting pains in what feels like my ovaries, and my bum hole is feeling a little tender when I sit on it or poo, but no where near the pain i have when on my period. I am trying birth control for 3 months and then going to see my doctor. I was just wondering if this sounds like something you guys have experienced? I'm nervous that I I do end up getting the surgery to diagnose me, they wont find anything and i'd just feel so dumb... especially since im noticing some pain outside my period, does anyone experience this as well?