Pain spreading 😫: I really apologise for... - Endometriosis UK

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Pain spreading 😫

princessk09 profile image
•8 Replies

I really apologise for posting all the time but I haven’t no one to talk too in my family or friends.

The past few days I was getting sharp pains around my ovaries as it was ovulation. It still is ovulation atm but omg the pain has gone 10x worse, I’ve got a sharp rectal pain and pain when I go toilet (sorry tmi) I was nearly crying 😫 the pain is all over my lower stomach around the pubic bone.

Why is the pain getting worse all of a sudden 😔. I can’t tell my parents as they think I’m dramatic and making it up.

Could it be linked to endo?

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princessk09
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8 Replies
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Alarna profile image
Alarna

Hello sorry u feel low at min ur not being dramatic is ur body telling u ur in pain. And ur not alone all of us on here under stand I also get pains when going toilet but they say it mine be overactive bowel syndrome I'm alao haveing a lap very soon to see where I have endos

Dawn84 profile image
Dawn84

Sorry to hear your struggling with pain 😣 Thats what this site is for to vent and talk to people going through the same. I get similar pains in my left groin and lower abdomem and very sharps pain when needing the toilet, when going and after in my tummy and rectal pain which I've been close to passing out its been so bad. I think it caused by endo. Are you on any meds? X

princessk09 profile image
princessk09• in reply toDawn84

It’s horrible, I’m struggling to sit down rn and I take codeine but it doesn’t really help xx

Dawn84 profile image
Dawn84• in reply toprincessk09

I've found taking cocodmol makes things worse as it makes you constipated. It's so difficult and I really sympathise. Have you had your endo removed? Is it worse going bsck to your gynecologist? I find a heat pad is my best friend! But other than that not sure what else you can do to help. I find my symptoms are worse 2 weeks out of four. Xx

princessk09 profile image
princessk09• in reply toDawn84

I’m still waiting for my first lap but my gynae and doctor think I have endo. Yeah my pain is worse during my period and ovulation xx

Dawn84 profile image
Dawn84• in reply toprincessk09

Fingers crossed you will get your appointment really soon. Might be worse ringing the gynaecologist and saying your struggling xx

MrsWalshy profile image
MrsWalshy• in reply toprincessk09

I'm so sorry to hear that you are facing this with so little support. I would second what Dawn has said about the Codeine, in my experience it has only ever made the pain ten times worse! I am currently taking Naproxen for the pain and it is definitely the most effective painkiller I have tried so far. Much love x

Clairey007 profile image
Clairey007

You're not being dramatic or making it up, you're in pain and it needs sorting. If your parents can't see and understand that, then there's something wrong with them, not you!! It's awful trying to get through something like this when you're not getting the support from those closest to you, and I really don't know what to tell you to do in order to get them to at least show you a little compassion and concern. I suspect that your stress levels over the way your parents are treating you and their lack of support is exacerbating your pain levels - you're experiencing mental pain/distress as well as physical which is only going to make things worse.

In terms of your pain, you have totally come to the right place for support, understanding and advice. However, as much as we are all willing to help in any way we can, only you can do something about it, and that means finding a way of getting to the doctor to discuss your pain medication. Aside from anything else, it sounds like you need some pretty strong pain relief which only a doctor will be able to prescribe. Book an appointment, if your parents won't take you, take public transport or call a taxi. If they don't like it, tough! It's your body, you know how you feel, and you need to speak to your doctor. You absolutely need to get your pain sorted, you can't keep going on like you are, especially as your lap won't be for a while yet. When you speak to your doctor (and gynae if you can), ask about the mirena coil. Ok, it doesn't work for everyone, but I've had one for two years now, and while it took 9-10mths to settle down, I've found it to be really good for managing pain, it should also help with bleeding and may even stop your periods altogether (though that doesn't happen for everyone).

Where do you live? See if you can find an endo support group meeting that you can attend to get the physical support you need, apart from anything else, you'll meet people and make friends who understand what you're going through, which (other than pain relief) is what you really need. Check out the Endometriosis UK website to find out if there's a group in your area, there's also online forums and a helpline number you can call for more immediate advice.

Other than that, I really don't know what to suggest. I'm *lucky* in that I don't suffer much with pain, partly due to the coil and the fact I have a high pain threshold, but it's not something I ever suffered badly with (except in the first couple of days of my period, which I don't get now...yay for the coil), so can't really advise one what the best pain meds are - but again, as with any other medication, you have to get the right one for you.

Really hope you get your pain levels sorted, and can find someone (or several someones) who'll support you in the way you need. As always, we're all here to support you, and give advice where we can.

C xxx

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