Frustrated

[RevDJP]

Why don’t GP’s understand endometriosis and what it is to live with the pain and other symptoms. I had surgery to remove my ovaries and Fallopian tubes 3=years ago. The damage caused by the endometriosis means that I have immense scaring and adhesions. Bladder, bowel and uterus are joined. I am in daily pain, have night sweats and very rarely sleep more than about 2 hours at night. I said recently said no to surgery to remove the uterus as the risks of damage to bowel and bladder were to great. My GP’s support is to constantly prescribe anti depressant drugs, which don’t deal will the problems and make me feel ill.

What are other people’s experiences?

[SimplyDeeDee]

It makes me so mad that we have to see the GP and go though so many drugs until they take you seriously, especially when they know what you have from previous surgery’s.

Do you have the opportunity to see a different doctor? In my surgery there are around 10 and 2 were able to move my procedure along. I still had to go for the ultrasound, MRI, CT scan AGAIN but they were done fairly quickly. Plus I have to educate them with journals, articles and case studies.

Also demand you are taken seriously, you know and live in your body after all.

Let me know how you get on, once you tackle them

[Hidden]

That's shocking that your Dr doesn't seem to know enough about it otherwise they'd understand somewhat, there's no pain relief that covers it enough to allow you rest?you must be at your Witt's end with it all,I've had bad period pain&bother for years,I get enough pain relief to take majority of it away thank goodness.best of luck to you.✋

[CJessicaD]

God I could not agree more. My GP and every other Dr I have seen at my GP surgery all insist on anti depressants, tramadol/codeine or “just carry on” with taking medication which clearly isn’t working?! I’m convinced my GP knows nothing about endo and hopes I won’t come back for another appointment. But we do! Because we are constantly in pain and struggling...