I have stage 4 endo and it is also present on my sigmoid colon and probably by now who knows where else. I was put on the waiting list for surgery to have everything removed back in 2019. My first dealings with zoladex was for 15 months whilst waiting for a surgery date amongst the chaos covid caused. I started to react to the injections and was taken off them (Feb 2021). After a up and down 2021 with pain sometimes unbearable and by Christmas 2021 my periods were back with vengeance it was suggested I go back on the zoladex but without HRT.
Since Feb 2022 I have had the bumpiest journey, my pain has been incredible at times and most months I have had a bleed of some degree or other, my libido is flat as pancake and when I feel more in the mood, you can guarantee I start a bleed/flare up!! My husband has also noted that I have been incredibly down and "lost my beans" and I must say I agree completely, my mental health has definitely not great.
I had my 3rd pre-op assessment at the end of April, but my record was put on hold as I'd had a chest infection and was waiting for an x-ray. 5 weeks later, just for peace of mind, I phone to see if my pre-op had been released and if there was any further information regarding time scale. It hadn't even been looked at!! So frustrating and not helpful for my current state of mind.
I feel so crap and so unhappy and scared of the op if and when it eventually comes and scared that I will feel like this forever once my ovaries are removed and living with no hormones. Or is most of this rubbishy feeling the side affects of the zoladex?
Do I just come off the zoladex and cope with the endo as it was? Do I come off the waiting list as I seem to not be getting anywhere and constantly feel in limbo? Or do I just sit it out and try and speak with my GP and see what they say/suggest?
Anyone else in the same boat?
Apologies for the long post, just need to rant and get things aired.
Thank you xx