Sooooo frustrated !!!: So today I had my... - Endometriosis UK

Endometriosis UK
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Sooooo frustrated !!!

Fighterxxx
Fighterxxx
7 Replies

So today I had my post op appointment with my surgeon and I am so angry and upset.

After a vague summary of my surgery she is “sorry to hear” my symptoms are getting worse, and has told me to take the pill and return if and when I have problems conceiving.

Why oh why are these professionals not doing more to support us, exploring options, or at the very least showing some empathy !!

I am so angry and upset. I feel like I’ve hit a brick wall and left to suffer in silence.

What else can I do!?

7 Replies
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Alarna

I wish I could say but ur not alone they are all just doing a job for money they don't care I feel the same also like we not listen too and brushed off but if it was one off them a lot would be done

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Fighterxxx
Fighterxxx
in reply to Alarna

It’s reassuring to know I’m not alone, but at the same time it’s so upsetting to know how much people are going through what I am. I’ve lost all hope of it getting any better. It’s so hard to remain positive when you suffer so much. X

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Samid76

You’re not alone, that gives me comfort sometimes, such a shame they seem to happy to dismiss us and our pain so easily x

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Alarna
Alarna
in reply to Samid76

I just feel like that every time I say it worse or the pain is unreally they seem to brush me off or not right it down for word to word as I am telling them they make out is not as bad or Iv not had it as long as I say x

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Nory

I have Endo stage 4 and have been on a waiting list for a year and I met my specialist 3 weeks ago and he still doesn't have a clue when my operation will take place and keeps pushing me to have Pros tap injection because I have refused it in the past I think that's why his delaying my surgery!! I have finally given in and taken it yesterday and have been in A and E all day and have had horrific side effects from it but I'm told they may settle down as I'm taking HRT tablets with it. Some women have reported it is really good and the best thing they ever tried but some women it doesn't suit but unfortunately you will only know when you try it, but yes the lack of empathy off the doctors/surgeons is discusting and I have been in hospital for the last 11 days and I got the impression of the nurses and doctors that they trying to say I look ok and I'm not in the floor screaming therefore I can't be in that much pain! They left me a survey to fill in and the only thing I put in it was " More Empathy and less Judgement" I think you will have to do your own research and find a solution don't rely on them they don't care!

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Fighterxxx
Fighterxxx
in reply to Nory

I’m so sorry to hear this Nory. It really is ridiculous in this day and age that women have to fight to be listened to. I’m only 23, and the thought of putting up with this for another 20 years is horrible. I really hope you get the treatment and help that you deserve xx

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Nory

Thanks I hope you find a solution to make you feel better to. I feel I can't move on with my life until this op is done as I have no quality of life left. I am 36 and would like to have children in the near future but all this is prolonging the process! But doctors don't seem to understand this or care. Day 2 of prostap so far Today I think I'm ok as I'm taking the HRT tablets with it. If you are not trying for children at the moment then this could be a temporary solution for you. Take care

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