Can you spare 5minutes? Can you help? - Endometriosis UK

Endometriosis UK

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Can you spare 5minutes? Can you help?

β€’16 Replies

Hey fellow warriors πŸ’›πŸŽ—

I was diagnosed with stage 3 endometriosis in 2011/2012, when I became worried that I hadn't fell pregnant during my 9year relationship. I also experienced strange pains and discomfort during menstruation and during other times which I put down to being 'normal.'

I was given a treatment surgery a year after diagnosis, which was beneficial for a good 9 months before it returned. I have since tried several contraceptive combinations for pain relief, but am currently on norethisterone which seems to be helping 🀞🏼

Still, my mental health suffers due to on-set of pain. I regularly experience anxiety, panic attacks and on-going depression. It is because of this I decided to investigate the pain experience of endometriosis and how it affects, and is affected by our psychological wellbeing for my dissertation at University.

To do so, I devised a short survey and was hoping you ladies wouldn't mind completing it? It is completely confidential and anonymous, I require no personal information and it can be done on a smart phone for your convenience πŸ˜„

Do you also suffer with your mental health? How does the pain affect your quality of life?

Here's the link:

Thankyou in advance ladies πŸ’›πŸŽ—

16 Replies

This is a great thing to be researching. I'm happy to do this for you.

I'm just wondering if you're considering the relationship in the other direction... That stress and any mental health issue may have an impact on endo? It seems to be an illness so impacted by hormones and a hormone imbalance. One huge factor that can impact our hormone levels is stress, causing cortisol (a hormone) to spike which then has a knock on effect on our other hormones. Then of course, pain & illness is stressful, especially when it's not recognised by medics or treated with other stressful treatments, causing more spikes... I have been so interested in the relationship this way.

Good luck with the research!

becciharman in reply to weekari

Thankyou hun, I think it is too. And yes I'm examining it both ways - how the anxiety can impact our pain experience too. I find it very interesting too, thankyou for all the biology behind it, that may come I handy πŸ‘ŒπŸΌI will post the results once I've collected enough data 😁and thanks again! πŸ’›xx

weekari in reply to becciharman

No problem, I'm a psychologist myself (or was, I'm having to stop work due to my health) and find it really interesting.

It's great you're interested in researching it more. It's such an understudied area and I find the medical approach so limiting. They seem to just view it as a 'bad periods and fertility issues' illness but its so much more. I haven't tried to have children and my periods are actually fine but I'm completely disabled by this. Like so many women, I was overlooked for years and have had so many issues with trying to understand what's going on.

I look forward to reading more about your results.

Done ☺️

becciharman in reply to Sar_

Thankyou lovely πŸ’›

Sar_ in reply to becciharman

I will ask a couple of my friends if they will do it for you. X

becciharman in reply to Sar_

You're a diamond πŸ’Ž thankyouuuu. The more the merrier xx

Sar_ in reply to becciharman

I work in psych research, and I actually looked at doing something like this as it has such an affect people don’t even understand or consider a lot of the time. Well worth doing x

Done it :) great survey, can I ask what you are studying at uni? Im doing adult nursing and thought about doing my dissertation on something endo related but decided to go completly different and do medication management as I was worried about the tutors understanding of endo. Best of luck with your dissertation! X

becciharman in reply to Hazel173

Hey Hunni, thankyouuuu! I'm doing psychology 😁oooh still that sounds so interesting! Good luck with your studies hun ... thanks again. Xx

Done 😁

Thankyou lovely 😘

Done βœ…

Thankyouuuuu Hunni. Sooooo appreciated πŸ’›

Done. Hope it helps. X

Really glad that someone is looking into this! I’ve done it 😊

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