I was diagnosed with Endometriosis 6 years ago, and with Interstitial Cystitis back in October. Since my last surgery in October, despite it taking longer to recover than my first two surgeries I've been feeling really 'normal' and like an actual human being. That was until 2 weeks ago when the unbearable pain returned, along with heavy bleeding, and not being able to pee! (Sorry too much information!) I was looking to find out how other women cope with the effect on their mental health when they are feeling so physically drained and like a human punch bag. I've been really struggling to feel happy despite recently getting engaged to the most wonderful and supportive man, starting to plan my wedding, and planning a move to a new city. The pain I am in, along with having to be signed off work really makes me feel like I no longer want to live, which in turn makes me feel crippling guilt because I have everything to be happy about in life.
How do others cope at work when you're in so much pain you can barely focus? Or like I've had to have you had to get your doctor to sign you off?
Also does anyone have any advice for my fiancé anything their partners do for them to make them feel comforted when they're having a bad time and have to give in to the endo and just rest? Although he has done lots of research on both Endo and IC, he feels useless when I am in pain and like there is nothing for him to do. I should probably know how to advise him but when I feel like this I can barely think myself.
Thank you for taking your time for reading, and any help and advice you can give me! x