Endometriosis UK
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Sorry if TMI

Anyone else get cramping after a bowel movement?

I currently can’t move without being in agony and getting cramps and sharp pains 😫 also get pain when opening my bowel (tmi, I know)

The bloating is ridiculous, I look pregnant rn

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I get this sometimes with my ibs even after a bowel movement I can still be in a lot of pain and bloating. I'm yet to find out if my ibs and endo might actually be linked as always had problems with both. One I used the heat gel on my tummy which actually helped with the pain in my stomach all I can suggest really

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Me too! And this also happens when I am not on my period.

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Yeah I’m not on my period atm but it’s more painful then x

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🙋🏼‍♀️ me also x

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Yeh i get this on period and with my ibs and only way i can stop it is buscopan ... it great for any bloating.

Also i have started a diet of only eating easily digestible food so ur body doesnt have trouble breaking it down and basically getting rid of it.

If it easy digested it doesnt have to convulse ( cramp) so much to get whatever out

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ALL THE TIME. You're not alone!!!

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Is it endo related? Xx

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So I has my laparoscopy in November of last year and i have endo on my bowel so that's what I've been told is causing the pain yeah

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Okay, I’m still waiting for my lap. I’m kinda nervous as to what they may or may not find as I’m having so many symptoms that are getting more constant and worse

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Yeah same here, my pains started about 4 years ago and have got worse ever since. It took me about 6 months from being put forward for the lap to get the actual op.

Have your doctors tried to stop you from coming on? That's what mine are trying to do at the moment...

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I’ve tried so many contraceptive pills and none have helped to stop my period

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with you.. can't stop me either. tried the injection and prostrap. currently out of ideas!

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One doctor tried putting me through menopause and that was horrible with the side effects

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Yep that's what i'm doing and I HATE it.

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Yeah I lasted a week haha

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they've made me do it for 2 months, the headaches are doing my head in (no pun intended) and the weight gain is a no no for me. Just don't know what the next option is, losing my mind.

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I gained a lot of weight on the mini pill and combined pill. With the menopause one, I had hot flushes and stuff.

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Ergh that sucks, sorry to hear that. Yeah i've been lucky and not had the hot flushes everyone seems to get. Well i hope they sort you out!

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Yes, it can be caused by endo. It’s really painful. I find the pain dizzying at times.

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I feel really sick and bloated today to the point my stomach hurts to touch

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Oh no. That sounds so painful. You might need a couple of hot water bottles. I find it helps a little with the pain.

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Yeah i might try that

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Yes I get this and it’s worse on my period, especially the sharp pain when opening my bowel. My gastroenterologist said my endometriosis is the cause of my IBS and the two go hand in hand. I had my lap Monday and they found large multiple patches of endo in 4 different places, one of which being next to my rectum which explains the sharp pain. I’m currently constipated after surgery but am hoping this will all improve once I’m recovered

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I’m nervous my lap won’t show anything wrong and I’ll be back to square 1. But I show a lot of signs of endo and last few months my bowel symptoms has been getting worse.

IBS hasn’t been mentioned to me as my new doctor and gynae suspected endo straight away

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I fear the same thing.....what if they find nothing. My pain is always with me. Worse for sure during my period. They thought I had IBS, did a colonoscopy and my colon is normal. 5 days till my lap

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Good luck for your lap xx

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I've had this before to the point I'm sweating on the toilet convinced I'm going to die hahahah

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Yeah hahaha I was like that last night 😂😫 I feel awful today and now I’ve started being sick and look six months pregnant.

I can’t use a hot water bottle because of the weather

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yep I have this problem. The bloat is one of the things that bothers me the most xx I had my period in the heatwave a few weeks ago and the hot water bottle was making me overheat and feel worse, but I need it for the pain...awful isn't it! xx

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Yeah my self esteem is pretty much non existent now. And omg I had mine during the last heatwave and I was just crying all night as I was in agony and sweating at the same time haha xx

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OMG! I posted about this the other day.

So, just a brief history. I've have endometriosis for 3 years - or shall I say that they found out I have endometriosis 3 yrs ago.

Anyway as of last week, my stomach bloated waaay more than what is normal for me and started on the right side.

It was sooo painful to urinate..my urine wasn't burning nor was my private area hurting..it was solely just above all of that in the lower part of my stomach.

I thought I could deal with it myself and rest it off in bed without bothering any doctors. So I took my daily tramadol that I take my endometriosis pain but that wasn't working. The pain got worse. I couldn't sleep on my side. I couldn't urinate with that part of my stomach being excruciating pain. The pain only got worse and started up growing in the middle of my stomach and left.

My stomach bloated up to the point where I literally look like I'm 8 months pregnant (this is above the normal endometriosis bloating I have). My fiance was so shocked. He couldn't believe what he saw. I literally look like I've been impregnated by something in the space of less than 24 hours.

Anyway, the pain was above my normal threshold at this point so I took myself to the hospital emergency room. They were useless. Utterly useless!!!

They gave me a urine sample - nothing came back. They have me blood tests - nothing came back. They gave me a basic x-ray that they give to any bill and Bob - and nothing came back. I asked them if they would be kind enough to give me an MRI , CT scan or ultra sound..they refused. THIS WAS THE ENDOMETRIOSIS DOCTOR THAT REFUSED! They could clearly see that I was in severe pain and that I waited 4 days before bothering any doctors and it's just gotten worse. They let me leave with an ibprofin tablet. I am being so serious right now!

They suggested I walk into the hospital where I'm treated and see if my consultant will see me without an appointment. They didn't write me a referral letter or anything to explain to him what's gone on. We all know how busy consultants are and that you can't just barge into a surgery and demand to be seen.

They were happy to let me stay in pain for the whole weekend. My consultant isn't even in hospital the past couple of days so I'm having to wait in severe pain until I know he is to see if he would be kind enough to see me for even 5-10 mins to book me into a scan.

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I’m still waiting for a lap but my doctor thinks that if I do have endo (signs are pointing to it) that it may have spread to my bowel. I’m literally more nervous now as I’m like omg what if the damage is really bad or what if nothing shows up on the lap. People already think I’m lying including my parents and best friend.

I have to go out with her tomorrow and I feel like utter crap but if I say I can’t make it as I’ve had to cancel plans in the past.

It’s the worse as I can plan for events in the future as idk when the pain will flare up as it’s becoming more constant and not just on my period and ovulation

Do you get a sharp pain going up your bum? Sorry if that’s personal haha

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I'm sorry to hear you're going through this darling.

If you do have endometriosis, hopefully it will show. A lot of people have had to wait years in order to be diagnosed. But if they're already thinking that you may have it, hopefully they'll run the correct tests.

I'm sorry that you're family are being like that. They really ought to be supporting you right now. No one would randomly make up the symptoms you're going through. Endometriosis isn't is and it's an ongoing chronic illness. So I think it's best tour doctor try to explain to them what's going on so that they can better understand and be more supportive.

Nothing showed up in my scans until they literally opened me up via a key hole surgery (for what they thought was appendix bursting - which wasn't the case) to find that in fact I had endometriosis.

Have You always suffered with very heavy and painful period pains? Mine would last over a week and I suffered with severe pain that caused me to constantly vomit and left me paralysed. I suffered with severe clotting as well for many years which in turn made me anemic.

I don't have the pain that you mention from behind. Only in the lower part of my stomach.

Let me know how things go for you. Good luck. Xx

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I have heavy painful periods but they only last like 5 days. But I’m in constant pain which varies from sharp and dull, to severe when I’m on my period.

I feel awful today with cramps/dull ache and nausea and I don’t know why as I’m not due on. I have to go cinema so I’ve just taken a lot of painkillers to try and help. Xx

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