Endometriosis UK
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*TMI POST* painful bowel movements during period

Sorry for the tmi but does anyone else get painful diarrhoea before and during their period? For the last year or so my bowel movements have been really loose (tmi sorry) and just before and during my period I get intense stomach pains and painful diarrhoea to the point I'm doubled over in pain and having to run to the toilet. Not sure if it's endo related or not though x

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I get it during my period, it’s so painful at times I’m just sat there crying. I don’t know if it’s endo related or not though xx

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Hello I also get this most of the time but even more intence during my periods but most days befor I need to go for a bowel movement it gives me cramps have to crip the sink some time but I have endometriosis

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Do you have endo on the bowel? x

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Sounds like what have? Pouch of Douglas endometriosis which can attach to the bowel and bladder, often misdiagnosed my surgeon says as ibs, I also have endo on womb with fibroids and cysts!!! Having hysterectomy on june11th after years of pain

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I have my lap on 18th June, will they check that during the lap? x

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Yes they should but mention it too to them also that you want them to see if you have pouch of Douglas, mines so bad at times when I need a poo that it hurts to walk can’t go swimming anymore as can’t use tampons as muscles push them out after 5-10 mins!! Oh the joy of being a woman xx

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I can't use tampons either even though I used to years ago, makes life harder when I'm on my period as I flood so constantly having to change my pad otherwise I leak. Yes the joys! Lol xx

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How old are you? Hope you don’t mind me asking...I’ve got extensive endo bladder and bowel and have had numerous laps over the years. My gynae won’t consider a hysterectomy yet I’m waiting for more surgery and am on decapeptyl. I feel well at the moment but I’m wary of stopping the decapeptyl as surgery has never given me long term relief. I’m 32 and was diagnosed at 19.

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I'm 27 x

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I’m 45yrs old, after lots of treatments and unsuccessful fertility am having hysterectomy but leaving my ovaries and removal of the pouch of Douglas on my bowel and bladder my operation date 11th June after years and years of being told to deal with it etc took my injection shot op dzhr on the 8th of May as have to have that x4 weeks before operation to help remove pouch of Douglas my surgeon is the top surgeon in this field, Thomas- smith walker but have had a long fight to get him.

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They not to shore as yet x

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I did mention this to the consultant at my appointment but he didn't say if it was endo related or not, have you had a lap? x

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24 may I go just hop it get sorted had a lot of problem since 15

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Not long to go then, mines on 18th june x

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Really worried about it just hope they listen and not fob me off x

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Hi. I was just reading this thread. Last year nice.gov.uk updated their guidelines for investigating endometriosis.. it now specifies that where there is 'cyclical IBS' (ie. bowel pain, diarrhoea, constipation and times of ovulation and/or period), they have to investigate further. It then goes on to recommend consideration of laparoscopy. Not all medics seem aware of this update so if you don't get taken seriously you could point this out. If it were me I'd print that page off internet and take with me.

I reported cyclical IBS 25 years ago.. aeons before they linked the 2. I was diagnosed last year with bowel endo. Our hormones themselves can cause diarrhoea or constipation so it may be unrelated but definitely push to get it checked. Good luck x

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Pouch of douglas endometriosis is also what I have, as well as endometriosis in womb, fibroids and cysts!!! Hysterectomy June 11👏🏾🙏🏾 After years of chronic pain and tests

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Thank you ☺ I have my lap on 18th June so I'll be sure to mention it to the surgeon x

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I recently read an article about why a lot of women get an upset stomach around their period.this is just in women without any issues. Apparently there is a release of hormone that helps the uterus to do its job. But the bowel cells/muscles can also react to this hormone and so they can be activated, making women need the toilet urgently etc. When I read this, I wondered if in people with endo this would be exacerbated, more hormones released and therefore more chance of an upset stomach. Just a theory.

I always get a dodgy stomach when my periods stays. Usually first 2 days and then I'm ok. Just something to add the joys we experience!

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I'm on the 4th day of my period and still have it, even when my periods finished I don't have 'normal' bowel movements but it's not painful

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Yes, every cycle at period onset. It was definitely endo.

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Do you have endo on the bowel?

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Yes. My nodule attached my bowel to my vagina and extensive adhesions had distorted it into a c bend. It was excised July 2017.

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I have endo on the bowel and used to be in so much pain every flipping day, not only that had rectal bleeding and was worse on my period too. I found taking activated charcoal capsules helpful, just take away from any medicines.

But what's really helped is taking serrapeptase, been an absolute lifesaver pain has reduced by 80% have the odd flare up but rectal pain and bleeding is minimal now. I keep singing its praises and I plan to write a post on it but wanted to go through several cycles to see and note the difference.

Hope things work out for you.

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Thank you ☺

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Hi. Im using serrapeptase too. I started low and am now increasing dose. Can I ask how much u took and for how long before reducing symptoms? And did it stop the rectal bleeding? ..

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Hi Bella

I started on 1 250,000 tablet when I wake up but on an empty stomach and at least an hour before food. I noticed my tummy was less bloated and the pain reduced after a few days. After a few weeks I'd noticed my rectal bleeding and pain had literally stopped, couldn't believe it. It's all trial and error really, some days I take up to 3 but definitely take more around my period. Not had any side affects either!

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That's really interesting. I heard of someone who used 3 of that strength a day to get rid of her adhesions on lungs (not endo related). Ive bn a bit haphazard with taking them and a lower dose. Ill definitely up them I think now my body is used to them. Thanks for your info :-)

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You are not alone with this, I get this just before and during too. :( then during the rest of the month I have bouts of not being able to go at all, can’t win!

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Yeah I get constipated too, sometimes passing wind is painful aswel x

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Me too, I can pass out and go dizzy after I poo, pouch of Douglas endometriosis

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Thank you x

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Such a relief hearing all of this!!! I have had insane constipation for 12 years (sometimes not going for 3 weeks) and the only time I would go was on my period and it was diorrhea.

I had my Lap April this year...still waotonf foe biopsy results but Im sure he said he found it on my pouch of Douglas (he spoke to me when i was still groggy)

So nice to hear im not alone!!xx

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I have constipation most of the time too with painful wind, then a few days before my period I get painful diarrhoea that lasts until a few days after my period. Sometimes bleed from my bum too and was told for the past 5 years it was probably a form of ulcerative colitis even though my colonoscopy came back clear for this, basically been told to just deal with it. And it's progressively got worse xx

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Yes same.

Ive been fobned off with every gasto problem out there with pracrically all coming back negative

as a child I even got sent for counselling sessions as they said its all in my head!! Disgusting

I do have a condition called Anismus. So basically my rectal mjscles work backwards. Instead of relaxing when they should they tighten up. So I have to have injections for this.

Keep listening to your body

You know best xx

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I get this during my cycle and my gynaecologist says it’s hormone related as well as nausea and vomiting. He says it’s all hormone related.

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I have this too and it is a relief to read that others have it too as I feel like I'm going insane. I had a laparoscopy in 2016 which ended up with a catheter being fitted for 2 weeks as they put a hole in my bladder and they didn't diagnose endo, just lesions. I had an MRI and an endoscopy which came back clear, as I have bleeding from the rectum every month. I haven't had any answers from anyone, even my gp said that my back pain is because of my age (43). I have asked to see a different gynaecologist which I have an appointment 29th May, fingers crossed. Am seriously thinking would a hysterectomy be the best thing?!

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I always get a dodgy stomach the day before my period that’s when I no I’m going to come on but as soon as I’ve had my period I’m constipated all month until my next bleed xx

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