Today had been rubbish: The fatigue today... - Endometriosis UK

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Today had been rubbish

KimPV profile image
8 Replies

The fatigue today has kicked my butt :( and my hip and legs are so painful.

I’m on codeine phosphate but it isn’t doing mucch, I also have naproxen. Tramadol doesn’t work on me and oramoph keeps me awake. Doesn’t anyone know of anything else I can try?

I’ve had the mirena too but my body pushed it out. Haha

X

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KimPV profile image
KimPV
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8 Replies
Stefk16 profile image
Stefk16

Have you ever been offered/tried clonidine or gabapentin? Xx

KimPV profile image
KimPV in reply to Stefk16

No , but I’m going to ask about them.

Boodie profile image
Boodie

I too gave had anotger bad pain day. This morning i had painkillers then lay down andcwas sick a few hours later. Think the painkillers were too much for me. I have been on codeine and ibuprofen every day for 4 weeks. I am trying to hold put today and not take anymore just some before bed. I sat outside as it was sunny. I feel crap though everyone else enjoying life and me stuck at home in pain. I feel for you. Have you tried hot and cold packs at same time to confuse ypur brain with the pain. It may help. Hope you feel less pain so on x

Starry profile image
Starry

It may be that the morphine based drugs dont work for you, in some people they actually intensify pain.

Drug alternatives tend to be Amytriptyline /Duloxetine or Pregabalin /Gabapentin. I was put on pregabalin by a pain specialist and though initially sceptical to be fair have found it very helpful.

Some ladies find alternative therapies helpful, tens, acupressure/puncture, massage, meditation, hot water bottles, baths castor oil packs etc

KimPV profile image
KimPV in reply to Starry

Amytriptyline makes me eat like I haven’t eaten before haha.

I’m going to ask about the others though, I’m going to the pain clinic next weekday they think my pain is abdominal wall. I really don’t think it is, but maybe I can talk to them about it.

Thanks for the reply

Starry profile image
Starry

Is there any prospect of excision if it is endo in abdominal wall?

I think pregabalin and gabapentin can also sometimes stimulate appetite as a side effect.

Ironically if it has, for me thats a positive as I've struggled to regain weight lost during my surgery ensuing post op complications.

KimPV profile image
KimPV

Do they ? Oh right.. that’s not helpful :)

No talk on endo with the pain clinic , as my gastro consultant referred me there. He was thinking of injections direct into abdominal for the muscle.. I’m not sure it would do anything tbh.

Hd123 profile image
Hd123

I'm currently taking a drug called pregabalin for my pain. It mainly targets the joint and leg pain I get and seems to work pretty well! Might be worth asking about

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