Well ive had my assessment. It went ok. Nice bloke. Took an hour. But undecided as to whether ill get it. He noted quite a few things, like my spinal stenoisis and the fact i have a slight scoliosis of the spine. In fact he noticed more of my GP. Was very sympathetic and understanding about the endometriosis. Knew it wasnt just 'painful periods'. Noticed im in diar need of physio and should probably be referred to a pain management clinic. But i guess its all wait and see now.
Had my pip assesment today.: Well ive had... - Endometriosis UK
Had my pip assesment today.
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Heloo85
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Good luck hun.
Xx
Thank you. Im quite shocked at how fast its going. From phonecall to assessment its taken 4 weeks. Im hoping the decision is fast too. Its stressful to the least! Xx
That's super fast. Hope it works out for you pip assessments are supposed to be super hard. Xx
The assessment wasnt too bad. Was really just going over what id put in my form. A quick physical. And that was that. I do have some physical deformities/joint issues/oesteoarthritis. He actually picked up on my scoliosis. Ive had GPs completely baffled as to why a physio would say the majority of my spine is 'stiff' and why one shoulder is about 1" higher than other and my ribcage is uneven 😂 .. Plus i really wasnt having that good of a day today and had to have a sick bowl. But in saying that i dont want to count my chickens just yet! I know it could still be a big fat NO. You just dont know with the DWP. Xx
Yes they use any excuse to say no that's what's put me off going for pip it was an absolute mission to get esa don't think I could face it with pip even though it would help.
Sorry to hear you have so much going on hopefully he will be one of the good ones for future reference I'd suggest getting it recorded and the fact you was having a bad day really helps 💗🤗😘
Esa was utterly ridiculous. I got signed off ESA for being fit for work and in the same week refused JSA because i was unfit for work. The DWP left me homeless and penniless. I do work now. Only 12 hours, but i earn as much as i would on JSA. I need a bit of luck. Im hoping its about to change! But ive gone in with the thought of nothing to lose. Might as well try xx
Ridiculous dwp are.
I suppose it's why they make it so difficult for us so we do shy away. Your right there's nothing to loose. Hope it works out for you let us know 💗🤗😘
I will do. Endometriosis has had plenty of coverage lately too. Get it applied for. You have nothing to lose either! xx
I know I might do I'm due my esa review in April. Headache xx
Please do let us know how you get on I also had my pip assessment last week and I’m so anxious waiting for the outcome. Wishing you good luck xxx
Hope your not too stressed with waiting have you heard anything yet? X
Hi, well let’s hope no news is good news! I’ve only been waiting a week but the stress is awful! I’ll post as soon as I hear too Xxx
Hi, hope your well just thought I’d update you got my decision letter today and was turned down for Pip yet again! I cannot believe with all my medical evidence I provided they have just point blank refused it I also have multiple sclerosis and other health problems but they have completely lied about everything I told them and not listened to my consultants advice! Feeling very disheartened now not sure if I should appeal or just leave it be. Sorry for the rant have you heard anything yet? Xx
I applied for PIP and scored zero for everything was so upset because I know my pain and struggles and felt they were saying there was nothing wrong with me. I cried the whole day and wasn't going to appeal but I did and again with more medical evidence it returned as a NO. I'm not giving up because this is a disability when I'm bad I can't do anything for myself and I can't work, I live with chronic pain most days. I feel they look at it as a bad period they have no idea about the daily struggle. I appeaed to tribunal awaiting a date. I wish you all good luck xx
Hello, thank you for your reply I’m sorry to hear your also having difficulty with Pip part of me wants to fight back but the stress of it all is awful it’s bad enough for us all having these health problems and then the added stress of being denied any help. I do hope Your successful with your appeal I think I will ask for a re consideration and see what happens but I’m pretty sure they will turn that down too as they did the last time xx
Im pretty sure im going to get turned down now! .. jeez. Id rather lose a limb than live with this endo pain, fatigue, nausea, constipation. Its uttetly ridiculous. Pip is supposed to help you cope with your disability and/or chronic disease! Xx
I mean the DWP is a load of rubbish. I honestly cant believe youve been turned down! Im not holding my breath although im surprised youve had your decision. I am still waiting! But i think i know what my reply is going to be now. Xx
Hi, I know the DWP are ridiculous! I think they don’t believe us when we tell them how bad endo is especially as the lady who did my assessment was practically smirking at everything I said. I might appeal but not sure it will make any difference other than cause more stress! On a lighter note hopefully you will be successful! Xx
Can i ask what stage of Endo you have. Tbh, its one thing not getting it for Endo, although i believe you should, you shouldve got it for MS! What is wrong with these people. Im unsure. Really dont know. I am very severe. Ive stage 4 deep infiltrating endo that will not respond to any treatment. Im 2 years on and still under BSGE because of its severity and not just because of infertility, but its impact on my daily life. Although it has caused more than enough damage to leave me infertile. But not sure if any of that matters to the DWP. My guy seemed very understanding, although, that might not mean nothing either. I had a stuck up b*tch for my ESA assessment who gave me 0 points knowing i was weeks away from major surgery with 2 specialists surgeons. I ended up homeless! She shouldve been sacked! Xx
Guys the dwp don't give a 💩 what illnesses you have unless it's things like the big c. If you go into your assessment well dressed and having a convo with them that's what they are going to write down fit and capable. If you show them how you are at home not engaging frustrated etc then they can see it affects your everyday life that's why ppl get awarded it. Their not bothered about written evidence as long as they can see you holding down a normal convo and your smartly dressed walking at a decent pace. They will fail you. They be nice to you to get you comfortable they will judge you on that day not on what you say but how you say it. How you act what you wear. Trust me they don't want you on the system and if you show them that day your capable then according to them you are. 💗🤗😘. Those of you that have not got it appeal in future bare in mind what iv said and show them how you are at home when your struggling oh yes and ask for it to get recorded prior to your assesment day💗🤗😘
Pip has nothing to do with fitness for work. You can work on PIP. You can also work on ESA. Although youre right in a sense, that it seems down to luck, and probably is to some extent, but plenty do get awarded for stuff other than the big C. People with the big C have also been turned down. It depends on the severity of disease. They are obviiusly not going to award anyone with mild endo who has a painful couple of days during their period, but plenty with severe endo who have got chronic pelvic pain along with other severe symptoms will. They cant award everyone cuz 10% of the female population have endo. Only 1% of those have severe disease. That 5000 women a year. Xx
From my experience and experiences iv had with family in the esa and pip situation from time your showing them you are capable of dressing yourself well and make up and having and eye to eye convo they are going to fail you. Plenty will get the award but it will be on how they are that day on the level if support they have that day with them on the level of evidence like the lady below said if your showing you need substantial help around living daily normal life then they will hopefully award you. I wasn't even diagnosed with endo before I got esa I was depression and anxiety and unexplained pain they kicked me off itvtwice the third time I made sure they recorded it took my friend with me and showed them exactly how I lived on my worst days they terminated the interview and sent me home awarded for another 2 years. I understand you can work but if your showing them your more than capable they will fail you. Been there done it so many tines with others even one person cried through her interview and they didn't acknowledge that the fact she was conversating with eye contact was enough for them to fail her. Of course she did appeal and got it awarded but it's the headache of it. They reject ppl with extensive endo stage 4 it's all about how you are on that day not about how your telling them how you are at home your judged on that assessment day. Working or not working. It's mostly about that day 💗🤗😘
Im not saying youre wrong, im saying the DWP is far more complicated than that. For example. For ESA. Both me and a friend went for it at the same time. I was awaiting major surgery. Now name me a hospital that would treat someone whos healthy? Especially perform major (expensive) surgery. I couldnt get off sofa most days. Dragged myself to assessment. Didnt look well. Got 0 points. My friend however always looked dapper. Full makeup/nice clothes. Has bipolar/personality disorder. Full-time at college. She got in support group and i got kicked off. Theres more to PIP and ESA than whether you look good enough to work? Xx
I have to agree there my mums got bipolar and been awarded esa and pip for life. I was just talking from my experiences. Dwp are full of 💩in my experience
Hope you get what you deserve hun and they don't be are holes with you either. 💗🤗😘
I agree .. The DWP are poo! 100% with you there. They left me homeless after finding me both fit and unfit for work in the same week. Believe me. I hate the DWP. But what im saying is there is no ryhme or reason as to whether you get it or not. Other than luck i think! Some people are rightly turned down (because not everyone is genuine) then others are caught in the crossfire, who deserve it but miss out. Its poo. It is poo! Im going to go crazy if they turn me down seeing as i cant stand up most days! 😂 .. But whats worse is waiting for the NHS. If they could actually fix my issues, i would happily get on with my life without the DWP. No surgery/drug/hormone has touched my endo, and my bones, after years of complaining to Drs are deforming more and more as we speak! Its a joke when youre stuck between the two. DWP are unhelpful and the NHS is useless! My GP said to me other day 'dont worry, we can fix all these issues!' .. So i turned round and said 'oh right, cuz these are decade old issues, when are you going to start fixing them?'. She didnt know where too look! Xx
It's a horrid situation to be in hun. Especially when you do just want to work and have a normal life.
Fighting with drs is enough to Make you insane. Have you tried looking into alternative routes diet enzymes etc. Iv found helped me loads. Also iv been having problems with my bones I know yours are worse, but do you use magnesium I find magnesium baths work wonders they help draw the toxins out and put the magnesium in through our skin in 1 month of getting a magnesium Bath every other day I feel so much better. I was aching and locking in my hips hands and feet my fatigue is no more. That might be due to early pregnancy but I do feel magnesium has helped me loads and the fact that so many of us be deficient makes a lot of sense for us to bath or put it on our skin. Taking it as tablet it has to go through the liver which is added headache for the liver especially for us estrogen dominant endo women. Also serrapeptase if you haven't got a blood disorder that eats away at scar tissue fights inflammation and has eaten away at cysts. If you look up kimttcnumber2 her last post she worked wonders in just 4 weeks I cleared my tubes in just 2 month it's worth a look into hun. Took the drs 18 years to diagnose me even then I diagnosed myself. Hope you get some relief soon hun 💗🤗😘
Yes. I tried do everything right. Theres honestly nothing i havent tried. Drs are a joke. For over a decade i was going to Drs about my back pain. And i mean pain so bad i woke every morning feeling sick! Been physio about 6 times. Both bounced me between 2. Still have no formal diagnosis other than spinal stenosis(?). At 32 i now have adult acquired scoliosis! Same with my feet. I now have adult acquired flatfoot deformity. Cant even bare weight most days. Was referred to podiatrist 3 months ago, still not heard anything. Its not even seen in women under 40? Im not over weight, had no injury, nothing. Still no formal cause found for that! It really is a joke. So now ive got a permanent limp and physically cannot stand up straight. But supposedly it can all be fixed 😂😂 .. Still waiting xx
It's horrendous. Your the same age as me. At times iv felt like I'm 70. I feel for you really bad. So sorry hun.
I hope you get some relief soon. All I can say is do your own research and try natural ways as drs synthetic drugs tend to course more harm than good in the long run. I wish you all the best hun. If these dwp don't award you appeal all the way 💗🤗😘
Ive just read the DLA guidlines and all it lists about endometriosis, is its not disabling. Well it can be from time to time? Jeez. What utter rubbish. So i guess its a no for me too! .. The fatigue associated with Endo is supposed to be on same level as advanced cancer, but supposedly not at all a cause of disability. What. A. Joke! Xx
That's why endo uk and others are always writing petitions for it to become classed as a disability. It's disgusting because endo comes along with so much other crap for a lot if us it also varies from person to person and the fact someone can gave extensive and no symptoms and minimal and a whole array of symptoms is something t they need to think of too.
You can't say endo doesn't cause disability it does and can aswel as mental torture fatigue one iv personally struggled with since a teen. Infertility all sorts of affects it has on us. It's a joke. The dwp are a big fat joke 💗🤗😘
I dont even get it. All cancer is awarded. Some indefinitely (end stage) and some during treatment only (early stage). Now bar the likelyhood of dying, what exactly is the difference between cancer and endo. Cancer = bad cells invading and damaging organs. Endo = bad cells invading and damaging organs. I mean fair enough if youve got superficial disease. But the second endo becomes deep infiltrating, the second it should be classed as a form of benign but troublesome cancer! Xx
That's what I was saying to you yesterday unless you have the big c it's very hard to get it. They really don't care. Even ppl with endo are at a slightly higher risk of developing cancer and your right the fatigue is that similar to the same as cancer. They are rubbish and all I can say is appeal.if youb don't get it💗🤗😘
Funny though isnt it. They wont name it as a form of cancer but will happily use cancer treatments to try treat it! Zoladex is a breast/prostate cancer treatment. My specialist is putting me on another cancer drug thats not even legal in this country yet for the treatment of endometriosis! But i have to go on it cuz everything else has flopped majorly! Xx
I know hun. The system is messed up and these situations are happening all the time. They know exactly what they're doing hun I could get really political about this but there's no point we're big nobodies and dwp drs are puppets on a string let's put it that way. That's why iv took my health into my own hands and now when I go to drs I tell them what I want after extensive research that's if I can't help my own self naturally first. I don't have time for ppl thatv don't care about me to play with my life. 💗🤗😘
Hi ladies, sorry you went through that with DWP.
Please all ladies that are sent for assessment with them request that the assessment is recorded and ask for a copy, they have to comply with this and you can refuse to undergo the assessment and another date given when they are set up to record it, for further help and assistance with assessments and appeals please go to your local CAB they can help, I was lucky, I have been on DLA for over 10yrs because of other health issues and I have just been awarded the ESA without a medical, this was because of the amount of medical evidence that was sent in and help from the CAB, I am dredging the day when they want to change my DLA to PIP but I have a really good guy from the CAB that has been fighting this for me and has assured me he will help with this as well, so please get advice before appeal or applying.
Hope this helps ladies
I agree endo can be really debilitating- I work part time with 2 jobs and sometimes it’s a real struggle to get to work. I think people don’t understand how endo can impact on your quality of life- I think most people think it just gives you bad periods- i wish! I think there is more awareness within the medical community- hopefully this will improve views and will become recognised as a disability- because it is. Sorry to hear you’re having a rough time xoxo
Hey . Did you get awarded it?
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