Scared

[MrsNGoo]

I’m getting booked in for hysterectomy soon. I have kids and don’t want anymore and I have been diagnosed with endo and adeno. I know it’s not a cure for what I have but I could really do with some support on this. The pain is forcing me to accept having the op but I still am scared

[cryst4l]

Hi there, just wanted to say try and think of the positives with having the op. You will have a better quality of life and the pain will hopefully subside. I have severe endo and adeno but going through ivf at present to try for a family and then have a full hysterectomy as advised by drs. You are not alone here, I totally get your pain and what you have to try and accept. Good luck xx

[MrsNGoo in reply to cryst4l]

Thanks so much.

[Sarahxnxhannah16]

Hi I'm 13 dpo I have stage 4 endo, pcos and a bicornurate uterus, I had uterus, tubes and cervix removed aswell as endo and severe adhesions and also my bladder was shaved aswell as it was stuck to my stomach wall, I was in quite alot of pain after surgery but a different pain from endo pain, was a relief not having the usually pains that haunted me everyday, over the past few days tho these pains that I had everyday have came bk which has got me really down, i dont have an appt yet to see endo specialist usually they want to see u in 6 weeks after surgery but a nurse had said to me 6 months he wld want to see me again x

[MrsNGoo in reply to Sarahxnxhannah16]

Oh my gosh. That’s is a lot for a young woman to go through.

[Sarahxnxhannah16 in reply to MrsNGoo]

Yes it's been tough, this has been on going since I was 11 im now 32 and I luckily have my 3 babies, my endo was in very vascular places which caused alot of blood loss, I was told to rest rest and more rest but I'm so hands on that I haven't listened and I'm probably to blame for the pains that have returned it cld probably be that I have done way to much, I tried to stay in bed but hearing my 2 little ones down stair crying for me I had to get up and lay on couch n that lead to me getting up and getting my own cups of tea and pain meds etc I'm paying for it now tho my partner goes bk to wrk tomorrow and I don't think I'm ready for it yet my youngest is still in nappies, wish I cld go bk and listen n stay in bed lol

[MrsNGoo in reply to Sarahxnxhannah16]

I am lucky my kids r a wee bit older. And my husband works from home. It’s a blessing.