Are my pains coming back? : Hi there, I don... - Endometriosis UK

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Are my pains coming back?

Samantha_Ryan profile image
3 Replies

Hi there, I don’t know who to turn too, I had my 4th laparoscopy at the end of January, endometriosis was all over my womb and both ovaries. I have been doing great, recovered well, had a bad week coming off my oxycodone as my body must have been addicted, awful withdrawals, but I’m over that now and really thought this would be the start of feeling great.

However over the last few days I’ve been feeling pains in the right side of my pelvis and stomach where I always got the worst pains. It’s been coming on and off, feeling it when I wee or from just stranding up sometimes, and tonight I feel in a lot of pain, not excruciating but it’s sore. Is this my pains back already?

I don’t know what to do, I don’t want to tell anyone as my family are so positive about this operation being the end to my pains. I don’t want to take any painkillers as it was so awful coming off them and I don’t want to go back to feeling spaced out out the time. I just want to be normal. I was so positive about this operation doing the trick and I can’t bare the thought of going back to being in pain constantly again, I just can’t do it.

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GrittyReads profile image
GrittyReads

Hi Samantha,

I'm not in your situation, so I do hope you get someone to reply, on here, who can offer good advice that fits exactly your circumstances.

However, meanwhile, why not contact 'Endo UK' who host this site. If you scroll to the top of this page, on the right at the top is an email address link and a phone number, so you could put your question to one of their trained advisors.

There is also an array of advisors with online links, who you could talk/post to if you click on 'Home' at the top of the page.

I hope that helps a little.

Take care,

Gritty

SingGirl profile image
SingGirl

Hi Samantha.

I am sorry you have suffered so much. I have had several laparoscopic operations due to severe endometriosis and adenomyosis and am currently in recovery after a total hysterectomy. From my experience, as frustrating as this may sound, I would suggest it’s a waiting game. The pain and symptoms can come back fairly quickly in some cases-however, it’s not been long since your surgery, your body is probably adjusting to dealing with pain without the help of those strong pain killers and I would expect (from my experience) surgical pain to still be there a little. However, if pain levels continue or worsen over the next few weeks, do get it checked. If you’ve a nurse or GP you can call in the meantime perhaps ask them to check you haven’t a water infection. I assume you’re due a follow up soon as well? It’s very hard for family and friends to understand the nature of this disease. Know that you are not alone (an online community is invaluable at times like this) and perhaps sign post them to Endo UK resources.

All the best with it

Lilloise profile image
Lilloise

I'm afraid I can't offer any advice but I'm following this post as I had my lap in Jan and found my pain returning within two weeks. 7 weeks out it seems to have unfortunately made no difference to my symptoms 😭. I too am hoping at least some of it is still surgery recovery. I know how you feel. Good luck xx

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