Could my endo be back already?: After... - Endometriosis UK

Endometriosis UK
43,206 members36,513 posts

Could my endo be back already?

After feeling amazing for about 6 weeks. The last week has been a nightmare. I ended up in A&E last Tuesday night and off work all week with awful pain. A&E were great to be honest and spoke to the gyne department etc and gave me Some oramorph and tramadol.

I had a lap and endo removed at the end of may. Is it possible it's back already?? Has anyone else experienced This??

I'm seeing my specialist tomorrow so hopefully will get some answers. I feel like I'm back to square one atm

Xx

7 Replies
oldestnewest

It can sometimes happen, but adhesions or nerve pain and post op cysts are other common causes of postop pain.

centerforendo.com/is-my-end...

healthywomen.org/content/ar...

1 like
Reply

Thank you x

1 like
Reply

Yes it can come back that fast, I was pain free for 3weeks after my lap, then all of my symptoms came back, it's taken me 9months to get anyone to listen, all they did was pass me to one post to the next, and tried telling me it can't come back that fast. I paid for a private gynaecologist and they said it sounds like endometriosis has come back...I'm now back on the NHS and seeing a gynaecologist in November

I had the private for just a one off as no one was listening or helping me, if she didn't think it was endo I wouldn't of pushed on the nhs to see someone xx

1 like
Reply

I have the same problem as you. Saw my gynae yesterday and she said that 60% of women who have a laporoscpy will continue to suffer with endo after surgery. I can try one more round of zoladex but it's been under two years so shouldn't but then have to have a hysterectomy. Wishing you the best of luck. This disease is relentless and so unfair.

1 like
Reply

thank you for your reply, what is zoladex?? im seeing my consultant this afternoon so I want to go armed with as much info as possible.

thanks x

Reply

Zoladex is a hormone treatment which effectively puts you into menopause for six months as shuts down your hormones and effectively the Endo. How longs it lasts is different for each person but I am going to give it another go as I had several months pain free on it last time. Best of luck x

Reply

LEG84 a review of recurrence rate statistics across different definitions, time frames and risk factors that influence it is here. If you define recurrence as pain symptoms the rate is much higher but clinical recurrence is lower ( endo actually found on lap follow up) actually the stats aren't all that bad as I'd expected. Much depends on the thoroughness of the excision in the first place , age and type of endo

ncbi.nlm.nih.gov/pmc/articl...

Reply

You may also like...