Feeling so fed up

[Hope1982]

Hi all

I am feeling so fed up, I am booked in for a hysterectomy in six weeks time and just on countdown. I am in pain all the time, recently I am getting a sharp stabbing pain on my left side, a horrible dragging pain down my legs and back, the constant feeling I need to wee and fatigue. I didn't leave the house all weekend, I broke down in front of my boss last week & I am just feeling like I can't cope.

I know I am ready now for my operation, but at 35 it is such a massive step for me to make, but I have struggled with endometriosis / adenomyosis and fibromyalgia for so long now, I just want to feel like a normal person! Although the thought of never having my own baby is soul destroying.

I do have an amazing partner (same sex marriage) and she is very supportive, but I think she just doesn't understand why I don't pick myself up and do more, I try to hide a lot of how I am feeling because I don't want to appear self pitying, although she does understand, it is just a really tough situation.

I am relying a lot on painkillers and have a hot water bottle glued to me, also at work, which is embarrassing but I try not to let anyone see it. I just feel so miserable and low.

Sorry for the rant and thank you for listening.

xxxx

[cherry78]

I really relate to this. I am 43, I have endo, adenomyosis and fibromyalgia. I don't have children and I am waiting for an appointment to book a hysterectomy so could be waiting many months to have it. I am trying to hold down a full time job but it is so incredibly difficult with the pain I have been experiencing. I have had four laparoscopies to treat reoccurring endometriomas on my ovaries. I also have endo on my urethra and diaphragm which cannot be excised. I am in a dilemma at the moment as to whether I have both my ovaries removed due to the cysts on them at the same time as the hyst. I just wondered whether you are keeping one or both of your ovaries? I have been told to keep one or both for my bone and heart health but I know the endo will grow back on the remaining ovary and I will be going back for yet another op. I

I am taking progesterone whilst I am waiting for my op called Utrogestan which is taking the edge off the painful and heavy periods. Perhaps you could ask if you could have some hormone treatment in the next 6 weeks to help you before you go in for the op?

I also broke down in front of my boss and got quite embarrassed afterwards. I gave her some info about endometriosis for employers which has helped her to understand more about endo:

endometriosis-uk.org/sites/...

She has been very supportive and I have explained how things should improve after my hyst.

I feel so frustrated after all these years of pain but I do see a bit of light at the end of the tunnel, yes I have been informed that a hyst doesn't cure endo but it does cure adenomyosis and for many women it has reduced the pain and at least I won't be losing too much iron any more each month.

I totally understand how you feel, hang in on there, things will get betterx

[Hope1982 in reply to cherry78]

Hi

Thank you so much for your reply. I am sorry you're going through all of this as well, it really is a horrible situation!

I am hopefully keeping both ovaries, but I have a funny feeling something is going on with my left one as I am getting a lot of pain there.

I have tried all hormonal treatments, and they just don't agree with me, which is why I am praying they don't need to remove both ovaries!

I really hope everything goes ok, always here if you need a chat xxx

[cherry78 in reply to Hope1982]

Thanks for responding and I hope it all works out for you, including keeping your ovariesx