Pain in back of my knees: Hi all, does... - Endometriosis UK

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Pain in back of my knees

regina79 profile image
20 Replies

Hi all,

does anyone get pain and weakness in the back of their knees.. which makes you limp and feel like your legs are so weak and tired that you need to stop walking?? Could this be a sign of endometriosis scarring? xx

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regina79 profile image
regina79
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20 Replies
Dakrav profile image
Dakrav

Oh yes I limp too because it’s not just the knee it’s the ankle, foot toe next to the toe thumb, and groin pain, and hip pain. And have sciatic pain that never came out positive in the MRI SCAN. So I really don’t know what’s going on, but it is.

regina79 profile image
regina79 in reply toDakrav

That is terrible and frustrating :@ I do hope someone can help you. Are you seeing someone for it? Did you ever had a laparoscopy?

Dakrav profile image
Dakrav in reply toregina79

Yes I had a laparoscopy. My right ovary is removed. I went to a podiatrist and now will go back again then will be going for rheumatoid doc. I have merina iud inside. IUD also helped me. I stopped taking endovan because IUD worked for me in controlling my periods. So I didn’t want to pop a lot of pills

Regarding endovan If you go online and google you will be able to read about it. It’s Komodo pharmaceuticals and endovan I suppose.

regina79 profile image
regina79 in reply toDakrav

Thank you. I’ll look it up

regina79 profile image
regina79 in reply toDakrav

How long did it take you to recover from this surgery?

Dakrav profile image
Dakrav in reply toregina79

It varies from person to person. I would say depending on age too. I was 34 so it was around a month at the time

regina79 profile image
regina79 in reply toDakrav

Oh wow. Did you have to stay off work for 4 weeks.? I don’t think that I can do that. What did they do during the procedure? If it’s ok to ask

Dakrav profile image
Dakrav in reply toregina79

I am a home maker. I lived in India at the time and now moved to USA

Dakrav profile image
Dakrav in reply toregina79

It’s painful and I guess endo patients are already sensitive towards pain. Then there’s weakness too. The first couple of weeks takes away for the stitches to heal. That’s the minimum time I would say then there’s a lot of weakness so basically one has to listen to the body.

regina79 profile image
regina79 in reply toDakrav

Thanks for this Dakrav. Take care x

Dakrav profile image
Dakrav

have you been diagnosed for endometriosis yet?

regina79 profile image
regina79 in reply toDakrav

No, but my specialist thinks that I do. He’s sending me to have a laparoscopy soon

Kate345 profile image
Kate345

I had pain down my thighs and legs and feeling weakness in my legs whilst waiting for a diagnosis. And was diagnosed with stage 4..

regina79 profile image
regina79 in reply toKate345

Hi Kate, sorry to hear about your thighs and legs pains. My thighs also hurt sometimes.. Are you having any treatment for it all?

Kate345 profile image
Kate345 in reply toregina79

Having zolodex injections before my next op I’m on injection 3

regina79 profile image
regina79 in reply toKate345

I see. Do they help??

Also, how long did it take you to recover from the laparoscopy?

Kate345 profile image
Kate345 in reply toregina79

About a week from the lap

regina79 profile image
regina79 in reply toKate345

Oh that doesn’t sound too bad. What did they do during the procedure.. if I may ask?

Kate345 profile image
Kate345

Currently flaring up bad horrendous stomach cramps and endo symptoms lol but been fine previously :( but I started the gym last week I don’t know if I’ve aggravated it

regina79 profile image
regina79 in reply toKate345

Poor you. I have to say, after doing Pilates 2 weeks ago I had severe cramps on my ovary and pelvic area before my period. I think it has stimulated the pain

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