Excruciating back pain.: Hi all, really... - Endometriosis UK

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Excruciating back pain.

victoria044 profile image
9 Replies

Hi all, really need some advice pls ladies. I have severe rectroviginal endo and adenmyosis. Awaiting mri and major surgery. The back pain is excruciating and radiates down my leg into my hip. Gp has given me tramadol,gabapentin and several others all of which hasn't helped. I can't get comfy at all anymore and my leg is numb and can't feel my toes I'm getting really worried. any advice very welcome. Thank you x

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victoria044
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durdledoor profile image
durdledoor

Sounds like nerve problems, Endometriosis can certainly affect your sciatic nerve which appears to be whats happening here with your numbness, good job you have had an MRI to rule out anything threatening, hope you wont have to wait long for those results.

Have you tried a wheat bag (microwavable) for the back? I have all sorts of codeine myself but I felt heat really helpful or maybe a TENs machine?

Sorry I cant help more x

victoria044 profile image
victoria044 in reply to durdledoor

Hi,thanks for your reply. I'm still waiting for an mri scan my consultant thinks the endo has infiltrated my lumber spine area. Unfortunately I'm allergic to codeine but am trying diazepam tonight to see if that helps, tens machine sounds good and I will look online for one. Thanks so much xx

durdledoor profile image
durdledoor

Glad it gave you some ideas, have u tried strong anti inflammatorys such as naproxen? My doctor refused to give me diazepam maybe he thought I was trying my luck.with the drugs? Lol! Can you let me know how you get on with it and if.it gives you any relief x

victoria044 profile image
victoria044

I've tried several anti inflammatory meds one of which was naproxen but didn't help which is why my gp has given me diazepam and tramadol.X

durdledoor profile image
durdledoor

Hi Victoria, just wondering how you are getting on with the Diazepam?? Has it given you any relief? X

victoria044 profile image
victoria044 in reply to durdledoor

Hu

victoria044 profile image
victoria044 in reply to victoria044

Sorry start again. Hi durdledoor.hope your ok? Yes the diazepam has helped with the pain and also helps me sleep,but only taking it at bedtime and occasionally during the day as it does make you feel very sleepy. Have my mri scan on Tuesday. Fingers crossed xx

Did you get round to trying the TENS machine? Amy's took a little while for her body to get accustomed to it but then it really helped. Also she has a reflexology session for an hour a week which massively helps relieve any symptoms like the one you have explained.

victoria044 profile image
victoria044 in reply to will-EndtoEndforEndo

Thanks you. I haven't tried a tens machine yet but will have a look. Reflexology sounds lovely!!! Will see if there is someone local. Thank you :-)

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