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Endometriosis UK
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Post hysterectomy but have developed pelvic pain

Im 50. I had a hysterectomy just over 6 months ago as I had huge fibroids and really heavy bleeding. My op went well but 3 months after I developed pelvic pain through to my back which is constant 24 hours a day. I have had it for 5 months. Gynae have x rayed me, blood tests and scanned. All ok. I feel lifeless most of the time and feel sick as well. Any suggestions please. I am going around in circles not getting anywhere. Is it possible that I have endometriosis? Could I have had it for a while or would have gynae seen it when they performed my hysterectomy ?

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Hi gillie I had a hysterectomy 4 months ago for adenonymis I’m in so much pain and my kidney hurt too I’ve had a scan which showed nothing they may take me back to theatre 😀

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My gyno said it could be scar tissue or adlesions it’s terribke on my left side

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Thank you for your reply. I'm sorry you're i pain too. Im just going round in circles between my gp and gynae. Not sure what to do next

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How did they know it was scar tissue or were they guessing?

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My gyno seen scarring when he did my hysterectomy top of tummy and now he’s guessing I may have scarring from surgery of the hysterectomy? I’m wondering if it’s endo as I had adenomysis!!

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I've just been to see my gp. She said that mine could be scarring as well from the op. It's just guess work though isn't it ?

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Yes probably Endo and or nerve damage. Time will tell what it is. Gentle Floor stretches might help or make it worse! I hope it becomes bearable. My Endo is everywhere so wasn't a option as self-sufficient pockets of Endo no longer required periods to continue growing. I am 60. I live on Codiadramol and morphine and can't work. There is no more help available for me as I have had all the drugs, damaged organs and can have no further surgery unless it is life saving and have been told I would probably then loss bowel and bladder with a hsyo.

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I'm sorry to hear that. It's rotten for you ☹️

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