Results coming back clear

[Emilya968]

Hello,

I would just like a bit of advice or opinions really...

So when I was 16 I was put on the combined pill for my periods as they were so heavy and painful I used to pass out. The doctor then changed it to he mini pill as I was getting migraines. For a few years I was very happy, my periods had stopped altogether and I was feeling good.

Then for the last 8 months I have been in a lot of pain, chronic pelvic pain very low down. Bloating to where I look pregnant, Back pain, painful intercourse (during and after) bleeding after intercourse, bladder problems (urinate often even wake through the night to go) .

I went to my doctor who referred my to see a gyno. When I had my appointment they sent me for a colposcopy and they took a biopsy from my cervix. My results came back saying I had cervical erosion and hpv. I then had cryotherapy treatment to remove the abnormal cells. The gyno said this could be the cause of the abnormal bleeding but it wouldn't cause the other symptoms.

I was sent for a transvaginal ultrasound which came back clear just that I had a slight forward facing uterus. A few weeks later I had another appointment to see my gyno, I explained that I had done a lot of research myself as I felt I needed to. I explained to them that I was sure I had endometriosis as my symptoms are very similar. I have joined many support groups to find out more information. The gyno agreed to do a diagnostic lap .

I went for my lap and was told that there was no sign of endo and that they had fitted the Korean coil as explained before.The consultant who did the surgery wasn't very helpful, nothing was explained to me at all I was just told everything looks fine. I was discharged back to my doctors. For a few weeks after the lap I did feel ok, I thought perhaps the more a coil was working and I was going to feel better.

One month in fro my lap, I'm experiencing all my symptoms again, the pain is coming more frequent. For me the hardest part was the painful sex, it's ruined my relationship and I've not been able to have sex for about 6 months because it's so painful. So when I did for the first time a month after my op it was just how I remembered it ... Dreadful. The week after I was at work and had to get sent to the hospital because I was in a lot of pain and very sore down below. The hospital said they couldn't do much for the pain as I will need to be referred back to gyno. So I went to the doctors, and have now been referred back .my appointment isn't for another 6 weeks.

I just don't know what to do. Is it possible endo was missed from my lap? I just don't understand how all the tests I've had done have come back fine when clearly there is something wrong for me to be in this much pain.

What can I do? I don't know what else the gyno will do when they see me again either

Thanks

[Mary-intussuception]

Hi Emilya

Sorry, I don't have this experience to advise or give an opinion, just wanted to say sorry to hear of all you've been through and the severe pain you are now in. Just isn't right.

Can you score your pain from 1 to 10? With 1 being moderate pain and 10 being the worst ever? What score would you give the pain now?

Could you keep going back to GP with this pain? 6 weeks is to long to wait in pain. I would contact GP, and keep pestering them.

[Emilya968]

I'd say 8. It's very hard for me with work and daily life. I've been going through this for a long time and Normal pain killers barely help. I've explained this to my doctors that it's affecting my life, they are saying that they're not sure what else can be done as I've had the tests done. Something isn't right. I'm in the middle of trying to look for specialists that can help me, I think I need a 2nd opinion.

[Hidden in reply to Emilya968]

Hi Emily

Was the gynae an endometriosis specialist? Ask the gp for stronger painkillers in the interim if you have to wait 6 months. X

[Hidden in reply to Hidden]

Sorry 6 weeks

[Emilya968 in reply to Hidden]

Hello,

No it was just a general gyno. I have strong painkillers from the hospital thank God!

[Hidden in reply to Emilya968]

Have you found that they help with this pain? When you go back to hospital to see the gynae ask if they have an Endo specialist you could see. Warm baths and wheat bags help in meantime too x

[-ALiViA-]

Hi there,

If you like you can read my posts. My tests are all coming back clear. Ultra sound, 2 transvaginal scans, bloods, stool samples.Gyne was sure I had endo, but last week my lap showed nothing.

I requested an MRI, which my doctor agreed to.

She said if that comes back with a problem we can deal with that, if it comes back clear she will refer me back to the gyne that was sure I had it.

Don’t give up, keep asking what can be done, what else can be ruled out before pain management is suggested x