I had an MRI for suspected RV endo in January and had a follow up with my gynae today. He said apart from some fibroids the MRI was clear, they cannot find a reason for me passing menstrual blood through rectum when having bowel movements on my period. My colonoscopy was also clear. I have chronic backache, left leg pain, hip pain, pelvic pain, nerve pain, nausea, fatigue, constipation and diarrhea and my periods always start with old brown blood first. He has requested a lap but has made me feel like it’s in my head and not endometriosis even though my gastroenterologist said it is. Has this happened to anyone else? I thought given my symptoms something would show up on the MRI, I even had dye put through. I feel really deflated, not that I want endometriosis but I want a reason for my pain, symptoms and misery 😔
MRI results clear: I had an MRI for... - Endometriosis UK
MRI results clear
I understand the frustration of nothing showing on scans yet showing symptoms. I too pass blood from my bowels, black blood at the start/end of periods. I had endo on my bowels/poD/uterosacral ligaments also my bowel is tethered into my pelvis etc but scans/mri's everything has been clear, even the colonoscopy was clear so no idea to why I bleed. I would most definitely have the lap as you clearly have the symptoms.
Thank you, that’s made me feel better. Sorry you’re having a rough time too but I’m glad I’m not going mad, my gynae does tend to make me feel like it’s in my head. Can I ask if your symptoms have been relieved since surgery as our symptoms sound similar x
The first big surgery I had did help for a couple of years, pain went from 11/10 to 4/10, but gradually has got painful again with pain in new places. My last lap which was roughly 8 months ago didn't help at all, in-fact it left me worse off so I'm now booked in for another lap -.-
Hey char, sorry to hear you didnt get any clear answers following on from your MRI. There must be a reason for the GI bleeding, you know your own body and clearly this not normal! My MRI did show a lesion in bowel wall, but at that time they still didn't believe it to be endo, took another 6 months and several more flexi sigs/ultrsounds to get to that diagnosis 😡. Currently waiting for surgery and looking like a bowel resection needed 😕 xx
Hi Pj,
I’m sorry to hear that it’s not good news for you. My gastroenterologist even said that if I had a colonoscopy on my period then he would expect to see endometriosis cells inside my bowel (he’s amazing) however I feel like my gynecologist just wants to fob me off. I’m sure if it wasn’t a gynecological issue then I would bleed all the time, not just menstrual blood whilst on my period. I feel so deflated and frustrated at not being listened to. Fingers crossed that you don’t need a resection and that you don’t have to wait too much longer for your surgery. I’ll no doubt wait months for my lap, it’s always a waiting game.. long waits, a procedure, no answers and repeat. I’m glad I have you ladies to talk to, it’s a big help xxx
Exactly, when i finally got referred to the endo centre, i had an ultrasound with a consultant radiologist and she was astounded that endo had been dismissed for so long despite the fact my gi bleeding was cyclical with my period. I know, it is so frustrating waiting and feeling like no one is really listening. Your gynae doesn't sound awfully helpful, is that in a specialist centre as well? Keep persisting, you are not crazy, this is not just all in your head xx
Well he asked for a specialist center referral last time due to my bowel symptoms but I haven’t heard anything since. He isn’t helpful at all and hadn’t even read my notes properly as he said if i’d Had a colonoscopy it could show why the bleed, when I explained I had and had told him this last time he then started reading my notes and then went on to say oh you should have had a colonoscopy not a sigmoidoscopy, I said I did look again they even took biopsies from my small bowel. I have honestly lost all faith in him now. He kept saying IF the blood is coming from your rectum and I had to keep correcting him and saying not if, it is. It’s so patronizing like I haven’t had periods for 26 years and can’t tell the difference between wiping my vagina and wiping my rectum. Ahhh sorry for the rant I’ve gone on a bit of a tangent. Hopefully he doesn’t perform my lap as I’m not hopeful if he does 😔 x
Bless you, don't apologise for rant, you are entitled to it! Have you thought about getting a second opinion? I'd be very nervous of going into surgery with someone I didn't have faith in. Might also be worth calling the specialist centre yourself to see if they ever even got the referral xx
That’s a good idea I think I’ll do that, I think I need a second opinion too, it’s just so hard as I waited 9 months to even be seen by a gynaecologist xx
Mri clear but could it still be on bowel?
MRI Results
MRI came back clear 
Pain during ovulation despite being on pill? Possible? Or impossible? Plus another question. 
What if mri is clear?
