My heart goes out to everyone on this site. I also suffered a lot if pain, lost friends and family over this due to the fact I became secluded. Missed out on a lot of beautiful moments in life due to constant waves of pain. Struggling through a new marriage that occurred when I had surgery (had endometriomas removed) and thought pain was gone but now returned. Will have hysterectomy September 22, due to endometriosis and a 3cm firoid. Suffered so long don't know how it feels to be normal. Pain, depression, and anxiety has left me exhausted. Just missed my brother wedding yesterday due to pain. My heart goes out to everyone dealing with this❤❤❤❤❤ pray this surgery works ( had so many) miss my family, friends, working and myself prior to diagnoses. Tired of some people making you feel the pain is all in your head. Ladies, I'm so glad I'm not the only one suffering. I also have been suffering for years. Miss my job managing an Alzheimer's unit, hanging out with friends, family, and my new husband. Used to love going shopping for clothes, now stretch pants and t-shirts became my best friend not to mention the couch. I'm hurting right now. Hugs to all of you and know I believe your pain when others do not.
Exhausted: My heart goes out to everyone on... - Endometriosis UK
Exhausted
Baggy clothes and sofa are familiar friends these days for me too. Thinking of you and good luck for your upcoming surgery. Xxx
Thank you so much
I know completely how you feel!! It gets you so down I'm waiting for my date for my hysterectomy !! Thinking of you 😀
Thank you
Praying for you to get your date asap. Know all about the moods. Keep your head up and know someone out there feels just like you. I try to watch movies that uplift me like comedies or reading with my best friend the heating pad on my stomach🌝
Hi thank you for praying my date has just come in the post 16th October x
Hoping your surgery goes well!! You are not alone on here and we are all in this together 😘😘
I wish I could have pulled up this website in my preop to ask more questions now that I know so many women feel like me. Thanks for the support🌝
I'm so sorry for you but will pray everything goes well with the surgery. I'm due a complete hysterectomy on Oct 23rd. Have been in pain for years and only found out I had endo 3 weeks ago.... and that was after it landed me in hospital as an emergency case. The pain was excruciatingly shocking, but worse were the doctor's who wouldn't give me an MRI and kept saying as I had a hysterectomy booked I just had to get my infection markers down and I'd be fine....makes me regret giving up my private medical insurance years ago...
I find it tragic that girls aren't taught to speak up. I was told by my doctor that I had dysmenorrhea and it would all be ok once I started my menopause. That was 5 years ago. I'd been suffering for years before but didn't want to bother the Dr.
Now I wish I'd banged every door down. We women put up with too much.....
Are you still bleeding? My new consultant is really good...she has put me in injections to stop my bleeding and I forgot to say I also have huge fibroids which she wants to shrink before my op....don't know if that is an option for you but with the injections my pain has stopped...it has given me the of the menopause though...I'm managing with supplements and a ridiculously expensive Royal jelly supplement but apart from minor hot flashes and a bit of low moods I'm not doing too badly .
Sorry for such a long reply but I've had such helpful tips from a lovely woman on the hysterectomy page and as far as I'm concerned I need as much info and help as I can get
be strong my dear.... abd keep posting on here...don't feel alone, hxx
Windancer05🌝🌝🌝 its amazing how another woman story sounds like your own. I don't think I have enough room to write my life on here dealing with this pain. To shorten it, I been asked to grow up by a physician because my pain was an imagination and it was people that really had pain like cancer in the ER and I needed to leave. I had a nurse tell me I would just be on ibruprofen the rest of my life. I was getting the depo shot in my stomach for a year. I think I have been on every birth control known to man. I had so many xrays, ultrasounds, pap smears and pushing on my belly during an exam that I can't count. I gained weight and lost weight due to medications I can start my own commercials. I became a workaholic to have good insurance to support my so called make believe pains. Been nauseated so much in waves with the pain my family and friends thought I was bilemic due to the weight loss at one time. Became an exercise phenatic when I realized it helped with my menstral pains (
Oh my dear, I can only repeat how sorry I am for you. I really feel your despair. But I'm praying your op will give you only relief and you are completely pain free afterwards, do take care and we are all with you, hxx
Good luck to you too. Will keep you posted since your surgery is after mine. My heart goes out to you too❤❤❤we will make it🌝 I will need help dealing with menopause. Can barely deal with the mood swings from the pain, can't imagine hot flashes. Pray my husband stays around🌝🌝🌝🌝🌝
I hope so too. The injections do work. Well I made it for 7 months without periods or pain. But unfortuanetly it was another quick fix. It felt so good though to be pain free for awhile🌝 hearing pads work so well. If only I could tape it around my belly throughout the day. I already had endometriomas taken out last October (never heard of that until after an immediate surgery from a physician visit) all of this is so new to me but now I can finally label what's been going on since I was a teen. Like you, in and out of ER's. I been on the depo since October, so no periods only the pain returned. My pre op was the other day and pray I make it to surgery Friday morning. Now I feel like I have a bladder infection and my right lower back started hurting (all started last night) Pain got worse today on lower right abdominal area and it hurts to walk straight today. Forgot to mention Windacer05🌝🌝 the surgeon did tell me after the surgery I would go into menapause, basically meeting a new friend I never met🌝🌝🌝🌝🌝JUST GREAT!!!!!! All of this is incredible to me. I'm there for you too. After exploring this website, I have read some amazing things from strong women. All of this has really helped me too
So sorry for the late reply. I didn't know you were on injections too. I'm planning to book another appointment with my consultant today as I wascso she'll shocked when she told I didn't ask anything! Now with this site I feel forearmed so I want to see her before. I'm concerned when you say the pain came back on the injections because I wanted to ask my dr if I could have another few months like this. I want to get really fit as it seems I might then have a better chance at recovery.
Like you at the best of times I seem to have a melt down inside so mentally I'm a mess and physically well let's just say I wish I'd had an exercise regimen in place years ago. And quite frankly I'm so scared..my lovely father and sister will help but I cannot rely on them for too long. The thought of being burden kills me.....
Anyway like you I'm so inspired by the amazing women on here especially like you who share their stories...much love, hxx
I dont want to be a burden to my hubby. Either 😭😁😭😭😭😁he may start thinking I'm bibolar soon. with all these mood swings
Just went on the hysterectomy page also. Good helpful tips!!!!!❤❤❤❤ Thanks. Love this site.
Hello Terrijennings,
I'm on Decapetyl injections....are they the same as you?
hxxx
Good luck hun.. We all know how you feel and can relate to everything you say. Stay strong hun hope surgery goes well 💗🤗😘
please help!!
Exhausted, tearful & awaiting answers...
Feeling low
How do you cope?
