I am 30 years old. I started menstruating at the age of 10.
When I was around 14, I would have these random "attacks" of abdominal pain that left me crippled. There have been occasions my mum had to lift me out of the bath, because I felt like my insides had totally twisted. Now, I shower. But there have been times when even stepping out the shower has caused me to double over in pain.
My cycles are generally 27 days, with some spotting in between. Sometimes though, these can throw me a curve ball and I'll have a 12 day cycle, or a 42 day cycle.
Intercourse has always been agony, and I have experienced 3 miscarriages (that I know of).
When I was 19, I was finally sent to a specialist gyno, after years of battling. They had tried me on multiple different contraceptive pills, tranexamic acid and mefenamic acid. Nothing helped the period pains. I had an ultrasound which revealed some growths on my ovaries, and that my bladder did not empty itself fully. I never heard anything back, and I learned to "live" with the pains for a while, dosing up on codeine and mefenamic acid, heat packs and regular trips to the GP. I continued to try different contraceptive pills, and begged my GP to send me for further tests.
About 2.5 years ago, I changed GP. And I informed them of everything that had gone on, they disclosed that the gyno had requested my GP sent me for a lap - but the GP had failed to follow this up. Thankfully, the new GP surgery sent me back to the gyno (It took a lot of tears, a huge break down, and a confession of how much I am struggling). I took a diary of symptoms with me that I had been keeping for approx three months, outlining how often I get upset stomach, pains, spotting, etc.
I've had the pre-op assessment, just waiting for a date for the lap.
However, about a year ago, I noticed an ear pain around ovulation. It feels as if my ears are filling up with fluid, and the feel a little wet. I get sharp stabbing pains in my ears. The last few months (4 or 5?) I've noticed this has started to spread.. the ear pain is now accompanied by a pain my left shoulder, the left side of my neck, and my left arm.
I'm wondering if this is linked? I have seen some posts on here, where other individuals are saying they have experienced similar. Has anyone had an outcome? Or a diagnoses of what this might be?
And I'm wondering how long anyone else waiting for their lap after pre-op?
I'm really at my wits end with all of this now. I haven't had children and would like to have children one day. I'm constantly exhausted and in pain. Does anyone have any tips on pain management?
hi 🌻somebody mentioned that pre op assessment valid for 12 weeks.
I have experienced pain in my left ear and left side of neck last year, during horrible UTI infection (3 weeks on antibiotics).
I am having my nose get blocked while I am sleeping (over a year now).
Also I have a lump on my left shoulder which make my arm aching sometimes. Last time GP said it is nothing serious.
Think all related to Endo.
I am waiting for hysterectomy now and will see if this symptoms get better after. I have no energy to go to GP now and ask for more tests and referrals 🤦🏻♀️
My pain disappeared after Prostap injections but I was very depressed after.
Thank you so much for taking the time to read and reply.
I'm so sorry to hear you're struggling. And I understand what you mean about going back to the GP. At one point, I felt like I was going crazy. I'm sure they're sick of the sight of me too.
Sometimes, it can just feel so lonely - it's nice to know we're not alone.
I hope you get some answers/relief soon. Good luck with the hysterectomy, that's a really brave step to take.
I am scared to death 😂
But I have hope to feel better after my operation because it is getting worse .
I can’t take antidepressants , so had 5 counselling sessions. At the end she said “you don’t need me, you know what you are doing and can manage yourself “ 😁
To be honest stories on this forum and instagram helped me a lot. I feel that I am not alone and lots of women are facing the same situation. 💛
Sometimes, all the box breathing, deep breathing & distraction jars in the world won't change the pain 🙈
Your GP is incompetent! It's related to endometriosis on your lungs this time!
I know. Maybe go to speak to another one when I have enough energy to fight 😁I have been gaslighted a lot 💛
I'd recommend keeping a tracker! I have an excel spreadsheet.. which sounds really lame, I know. But every day I update it with what I've felt (pains, mood, etc). It really helps when you go to appointments.
I was admitted to a&e with chest pain, radiating down my left arm and neck, jaw etc.
A&E didn't find anything. So I kept an eye on it for a couple months, and eventually I told my GP.. I've had this symptom, it's on going, it's related to my cycle.
My GP sent me to the cardiac clinic (who obviously didn't find Angina)..
I was discharged NFA.