Endo pain but no endo visible?

Hi all,

So it's been a year since my second lap with removal of endo and I've just been for the results of my pelvic MRI at my endo clinic. So the MRI showed no visible endometriosis so fingers crossed my last surgery was a success!

However, I've still been suffering since the lap with crippling pelvic pain, pain when going the bathroom (both ends), pain during intercourse etc. Sometimes I am crippled with pain it's so bad and funnily enough Worse than before I had surgery. The other aspects of endo headaches, brain fog, fatigue etc i'm still having however I've been told now it could be CFS as I've been getting sore muscles and glands also.

The gynae told me in some cases with having endo and then having it removed it can change the nerves and trick your body into still having chronic pain, has anyone else experience this or know any more information about it?

I'm now being referred to a pain management team and I have to go back to endo clinic in 6 months for another check up.

Anyone's personal experiences with his would be greatly appreciated!

6 Replies

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  • Hi, give this a read it may be helpful x

    fibromyalgiatreating.com/th...

  • Thank you 🙏🏻 x

  • However, doc said they didn't think I had fibro as I wasn't flinching from being touched? I just can't seem to find any info online at all about long term pain after endometriosis removal x

  • It's most likely to be the scar tissue.

    It's chronic and doesn't go away. I have heaps of it in my pelvis from surgerys and it's just as bad and endo sometimes!! Xx

  • That's helped, thank you. I was worried I was going crazy and imagining the pain. It's a never ending cycle for us ladies, it's horrible! X

  • I was referred to the pain management too following second lap and continuous pain. It doesn't go away. It's a chronic condition but the pain management clinic should help with lots of therapies and medications. Xxx

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