This is my first post and am really just hoping that someone else has had a similar experience to me (partly so I know I'm not going crazy!)
Since I was about 15 I've had irregular heavy periods, pelvic and abdominal pain. As I got older I then also started having pain and blood with bowel movements whenever I was bleeding, and then also really painful sex.
Doctors were first convinced I was either pregnant or had an sti and was too scared to tell my mum and dad (completely untrue) then after taking at least 4 pregnancy tests in one hospital trip, they eventually decided i just wanted time off school, gave me the pill and told me that would be me, although did admit I'd had some cysts and they had trouble finding one of my ovaries in a scan (which I was told was really normal).
For years I had to just put up with it, then when I was about 21 they finally referred me to another gynae who told me he suspected it was endometriosis but that due to my age he didn't want to do surgery on me. At that point he told me to take the pill continuously with no breaks and, again, that was me left to just cope with it.
Several consultants have told me since then that they also highly suspected I had endometriosis but it wasn't until June this year I had my first laparoscopy..... which is where I'm now really confused. After waking up from surgery, the doctor told me I didn't have endometriosis but they did have to laser away (sorry can't remember the proper term they used) a lot of scar tissue, and that I also had so many adhesions caused by the scar tissue that my bowels, ovaries and a couple of other organs had actually all fused together and had to be cut away and separated. No one knows how I got the scar tissue or adhesions, as I've never had surgery before, and they aren't going to investigate any further.
I had a longer recovery than expected: infected wounds, a kidney infection, a small tear in my bowel, and then chicken pox meant I was off work for around 6 weeks. After all that I was kind of hoping that would be me miraculously healed....... but I'm far from it. I still get horrendous pain, a lot of it concentrated on my right side, and even more frequently than before I'm getting so much pain that I can't sit down or put any pressure near anywhere down there. I'm also still bleeding but they inserted the mirena coil while I was in so I think that's to be expected.
I'm now at the stage of having no idea what to do. I'm in so much pain and no painkillers are working for me. I had to leave work after only a couple of hours today and feel terrible about missing it again. I'm trying to get back to see my gp, but our surgery is a nightmare and I can't even get an emergency appt until next week. And I'm so frustrated that I feel as if I'm just back to square one as no one can tell me what is actually wrong with me or if I'll end up with adhesions and scar tissue again.
Sorry, I know this has been such a long post (thanks if you made it through) but please tell me I'm not going completely crazy and someone else has had this too?