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Endometriosis UK
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Confused

Hi,

I had laparoscopy in/around October 2017 and the general NHS gynaecology consultant only looked in my pelvis and found nothing. Fast forward to August 2018 and I had to have my appendix out and they found bowel adhesions and scar tissue but my appendix was normal. Gynaecology are really shocked because they didn’t find anything and are saying it could be fast growing endometriosis? Is it possible that they could of missed it the first time as gynaecology said that the scar tissue and bowel adhesions would of not been caused by the first lap!! Do you think I should ask to be referred to an endo specialist?

Thank you! X

10 Replies
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To be honest, it just sounds like they missed it - which happens pretty often if you do not have a speclist endo gyno.

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Thank you, do you think I have the right to ask for a specialist endo appointment?

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Yup - get yourself refered to your nearest BSGE specalist center, these centers and teams are trained in endometriosis and can often provide more advanced care than a general team bsge.org.uk/

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This is exactly what I had, they first stated I had appendicitis’s removed it later stated they never thought it was my appendix so done a test for endometriosis, they found nothing but decided to still to put me on zoladex, nearly a year later and I’m still bleeding through the medication, I recently as well have been unable to empty my bladder or bowels my doctor said she thinks the endo has grown which is blocking the bowels and bladder but the specialist don’t want to operate again and not find anything but my doctor has supported to me to push for an operation again! My doctor said sometimes the endometriosis isn’t active so can’t be visible at the time they operate but I would fight for another laparoscopy! X

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Whats zoladex if you don’t mind me asking? Its so unfair sometimes what we have to go through, they don’t understand the problems and issues it causes! Surely because you are struggling to empty your bowels and bladder they should have to do something? You sound like you have a really good doctor. I think I’m going to try push to see a specialist and get there advice, thank you x

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Goserelin I think it’s caused, they won’t until I see my specialist which is so frustrating! Yeah definitely you should keep pushing my first doctor just kept palming me off as young girl with heavy periods but I’m so lucky this other new doctor supported me and pushed for a referral now if anything goes wrong she is straight on at my specialist you should Request for a genealogist referral as it even fair to live that way :/ don’t think people realise the impact it has on peoples life’s x

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The appointment waiting times are ridiculous too! I spoke to my GP yesterday and they were so unhelpful and but then I managed to speak to my gynae consultant who said she needs to me try manage for the next couple of weeks/months until shes got my notes and things from another trust but she thinks its fast growing endometriosis 😕 No its awful I read some of the posts on here and its awful. Thank you so much for your comments x

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Try using Epsom salts in the bath it should help relax the pain! I use them I think there pain relief for inflammatory in muscles and stuff which I felt helped relax for a little while! X

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Always see an endo specialist. Have excision surgery. General gynae are not experienced enough to deal with it x

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bsge.org.uk/centre/

Www.endo-resolved.com

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