Hidden6 years ago

I'm in a similar position, I had an ultrasound which came back clear but the pain is definitely getting worse and I fear a lap wouldn't find anything, but I think it's worth it?? They keep telling me I'm too young (utter bull) and to hold out til I want kids but tbh if the pain is bad and the option is available to you, I'd do it, then if they DO find nothing, you may be back at square 1 but at least you have one less avenue to explore! Wishing you all the best x

Harry89 in reply to Hidden6 years ago

Thank you that is good advice. I'm sorry that You are in the same boat x

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Lizzielizzielizzie6 years ago

I would say that the advice someone was given to "wait till you have kids" is particularly poor advice. As endo can stop you falling pregnant. In fact laparoscopy was one of the things offered to me for infertility investigation.

I would say it's better to have a lap sooner rather than later as if they find something they can treat it before it gets any bigger. But I would also suggest that you do checks on the person who would be carrying out the lap, to see how much experience they have with endo. Hope that helps x

Lizzielizzielizzie in reply to Lizzielizzielizzie6 years ago

Ps I just read back your earlier post... presumably they have fully investigated any bowel issues and checked that it's not a bowel issue causing you shooting pains?

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Harry89 in reply to Lizzielizzielizzie6 years ago

I they haven't investigated anything with my bowel. When I had my last laparoscopy they said I had an inflamed bowel and they put me on laxatives but haven done anymore on the bowel.

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Leacon6 years ago

I've had doctors tell me I'm too young for endo and a fibroid and my pain is just period cramps. Its super frustrating. But my ultrasound showed I had a fibroid but didn't show any endo. They suggested a diagnostic lap for my fibroid and while they did that they also found I have endo. So I think a laparoscopy is good because itll be more clear and exact than an ultrasound so you can explore options from there.

sonic766 years ago

Just because there is no evidence of cysts, does not mean that the endometriosis has not grown. It doesn't show on an ultrasound, so could very well be there.

Hidden6 years ago

The only true way to diagnose endo is through surgery. An ultrasound cannot be trusted in these circumstances. I would suggest having the laparoscopic surgery done in order to rule things out. It is a fairly 'easy' surgery to go through and recover from. I had laparoscopic surgery done 5 days ago for infertility. They found extensive endo during the surgery. I have never had any symptoms of endo, so it came as a complete surprise. Without the surgery I may have never found out about it. Talk with your doctor about laparoscopic exploratory surgery and decide if that's an avenue you want to take.

Harry89 in reply to Hidden6 years ago

Yes I think I'm going to. I've already had a laparoscopy before so know what to expect. I've tried talking to some of my friends about it but it's hard because they don't understand it. Hence posting on here to help make my decision.

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Hidden in reply to Harry896 years ago

I'm sorry to hear that your friends aren't understanding. Lucky them that they can't relate! Having health issues is terrible. I hope you get some answers soon. The not knowing part is often more difficult to accept than a diagnosis.

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sanchia466 years ago

Can I ask how you were originally diagnosed with endo as it doesn't sound as if you've had a lap before? An ultra sound cannot diagnose endo accurately only a lap can

Harry89 in reply to sanchia466 years ago

I had a laparoscopy nearly 3 years ago

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Harry89 in reply to Harry896 years ago

Sorry for not being clear enough this will be my second lap if I go for it. I was just asking people's advice about whether to go for a second one as the last time it only showed up to have a small amount and they fitted me with the coil so I'm not likely to have more am I?

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sanchia46 in reply to Harry896 years ago

Take out the coil

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