Endo bloat and pain: Hi guys I'm totally... - Endometriosis UK

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Endo bloat and pain

Jodelena
Jodelena

Hi guys

I'm totally new here so sorry if I re post anything that's already been said/answered.

I got diagnosed with endo last December and literally a week ago with polysetric ovaries. I'm in constant pain and have already had a laparoscopy. I literally am so bloated it's unbelievable. People have asked how far into pregnancy I am and even been called fat. I wear baggy clothes to hide my bloated belly and it's really depressing me..

I was wondering if anyone else has his issue and if so what you do to help beat the bloat and the pain?

Tia xx

8 Replies
oldestnewest

Hello, sorry to hear how cruel people can be. I suffered terribly with endo bloat but I found when I started going gluten free my bloat has settled down. For pain I use hot water bottles and (IF needed) I take 2 500mg of paracetamol 4 times a day, but I'm not one for taking painkillers so mainly use heat, If the pain is too much for you, you could as your GP for something.

carol27
carol27 in reply to Lovisa

hi there, i am new here too. i have just been offered a lap but am too scared to go for it at the moment. i want to find out more about the surgeon. i have lots of bloating and have been gluten free for years. i suspect it may be dairy that is the problem. have you tried adjusting your diet? x

Jodelena
Jodelena in reply to carol27

Hi. Thankyou for your reply. I tried changing my diet and still nothing helps :( cutting out pasta and bread can sometimes beat the massive bloat but I'm bloated everyday even if I drink water and nothing else! As for the laporoscopy honestlybplease don't be scared. I'm petrified of needles and hospitals and they were so lovely and understanding. It helped give me answers to and at least be on the right path medical wise. I had pain after the operation but like all surgery you do and it was bearable. I have three very small scars one larger one in my belly button and one at the top of my pelvis area and one to the left side of me and I barely notice them :) I got allot of answers out of my lap as I've been having pain and endo symptoms since I was around 17 and I'm now 29 so it was a huge relief. I hope you find the same :) xx

Jodelena
Jodelena in reply to Lovisa

Thankyou so much x

texasbamagirl
texasbamagirl in reply to Lovisa

I just started going gluten free to help with my bloat. How long did it take for you to notice a difference?

Lovisa
Lovisa in reply to texasbamagirl

For me, it roughly took about 2/3 weeks before I started noticing.

Hi,

I'm really sorry I haven't got any good answers for you but just wanted you to know you're not definitely alone!

I too suffer with severe bloating to the point I look like I'm about to give birth. I was told years ago that I was gluten intolerant but even when I don't eat gluten I'm still bloated. Like you, even if it's just a glass of water!

I have tried many things and at the moment I am taking probiotics and digestive enzymes to see if that helps, but after years of trying different things nothing has worked for me :(

The only time my stomach has been completely flat was right after my open surgery to remove a huge endometrioma cyst which resulted in losing my left ovary and tube. I thought this was it! But then I had to have prostap injections two days later and subsequently the mirena coil, my stomach was back with a vengeance.

So I definitely think it's hormonal related and it can really get me down. No matter what I eat, how healthy I am or how much exercise I get the bloating is always there. Skinny arms and legs and this huge belly.

Sorry I'm not much help and haven't got answers but just wanted to let you know I feel your pain and totally sympathise.

Cath xx

Jodelena
Jodelena in reply to Cathrd

Thankyou it's so good to know I'm not alone. I honestly hope for you and everyone who has this that the pain and all that comes with endo goes or at least we get more answers or treatment to help xx

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