Endo advice. 20day periods after operations change pill or have another operation?

[Hannahlouiseg]

Hi,

Last year I had 3 operations for endometriosis. Firstly to see where it was (endoscopy?), secondly to remove the endometriosis, thirdly to remove a mirena coil that was making me bleed just from walking as it was misplaced.

Last year I didn't stop bleeding for over 20 days on a few occasions. Due to this there was a large period where I had to take four of my progestogen only pills a day instead of one, alongside tranexamic acid and medroxyprogesterone twice a day. Last year I experienced anxiety and depression for the first time in my life and I feel this high level of pills each day. It was very scary to not know myself or understand why I felt sad for no reason.

It's been a year of taking the progestogen pill once a day only and now I'm back to 20 day heavy periods. I also have recently started to get huge clots coming out. They've told me to take medroxyprogesterone again but I haven't as I'm worried it will bring back the anxiety and depression again. It took a whole year to get back to normal so I'm so scared of changing my hormones again.

I don't know what to do next. I know I need to change tactics. I have migraines with auras so can't take the combined pill.

Do you recommend I take the merina coil again (even though it went so badly last time ég if I walked too fast blood would go down my leg), switch to the injection, get an implant or what. I'm so unsure of what to do and feel like I need another operation.

I'm 26 and in a relationship so would prefer not stopping contraception. They keep telling me the endo would be better after a kid but I'm not ready for a kid yet financially or mentally.

Sorry this is such a long post I haven't written here before and just frustrated.

Also feel it's time for another ultrasound to see if the endo is back!

Sorry again for the long post

[Suzied2b]

Hi hannahlouise. Havingredients the mirena fitted again is definitely a good option. Ask for a different Dr or nurse to insert it if you feel better doing that. Did they not scan you straight after insertion to make sure it was in the right place? They should do this. I had mine fitted on may 16th for my endometriosis, I've had a lot of days spotting ando just finished a period. I'm still experiencing pains but trying my hardest to push through it and try give it the 3-6 months settling in period.

I'm currently trying a king amitriptyline to help with the pain but debating changing to tramadol.

I absolutelyfe your pain it's the worse pain of any kind. All mI need started in June 2015 when I got sterilised.

Keep us posted xxxx

[Hannahlouiseg in reply to Suzied2b]

I didn't see this until now. Thank you for replying. Three years on and I'm getting a laproscopy in a couple of months as my symptoms have returned. I did get another coil fitted and it paused the growth of the endo dramatically without major side effects. Really appreciate hearing your experience