Hello Ladies,
I've got my appointment for my surgery at Hull hospital, Castle Hill hospital.
16th August I'm a bit apprehensive it's either full hysterectomy or partial.
My bowel I don't know about he said he won't know until he goes in. I'm a bit scared if I wake up with a colostomy bag on. What operations have you ladies had. Did they go OK. Have any of you ladies had to have a colostomy bag.
Lol
Sam
Xx
I'm being told I may have to have a similar op so keen to see the responses on here - good luck Sam x
I have had a hysterectomy with excision of bowel endo. I also had a BSO (removal of tubes and ovaries) and a cystoscopy and stents put in so they could deal with the endo on my left ureter at the same time. Prior to that I'd had surgery to excise endo from my bladder and drain the cysts on my ovaries.
With total v partial hyst I assume you mean whether or not they will leave your cervix in - all I can say is please be as informed as possible before you have the surgery, and if there are things you're unsure about, ask and keep asking until you get answers that you are happy with. I had a total hysterectomy and my cervix was removed - literally all I have left is my vagina.
Although they have to warn us about the possibility of bowel resection, the chance of it being required is small. This tells you how many excisions of RV endo each bsge centre carried out and the type of bowel surgery needed. bsge.org.uk/wp-content/uplo...
I was warned of the possibility of resection but in the end they were able to shave the endo off my bowel.
The first month post op was rough. I am now 4 months post op and generally doing pretty well - I am off all pain killers which is brilliant and I don't miss periods at all. I have only been on HRT for 3 weeks so am in the process of trying to cope with the menopause and it seems that my thyroid may have packed in as a result of the surgery. However I do not regret having it done - I was so unwell that I didn't really have many other options.
Hi Hidden Glad you feeling better and are overall doing pretty well x
Hugs. I go in for excision of endo nodule on my bowel and cervix a week today but chose no hysterectomy following an unsuccessful zoladex trial. I have been warned it could be anything from shaving to a disc to resection and stoma is a risk. They never know how friable the bowel is until excision is started is why so they have to warn you and make it clear it can't be ruled out but statistically these risks are very low .
Do ask your surgeon what his stats are if you are concerned, mine told me he has never yet had a stoma or resection and my op was mid difficulty in the range of bowel ops he's done. He said he does two severe cases like mine a month. BSGE require that all accredited or provisional endo surgeons keep a record of all pararectal ops.
Like Jo, I found emotionally that it's easier to accept the risk when you know you have exhausted all other non surgical options and I found weighing up the fact that leaving bowel endo there risks future need of bigger more dangerous surgery with higher likelihood of bowel penetration or resection in the future helpful. Though if you've had success with zoladex and gone for hysterectomy that risk is much reduced, depending whether the endo type has developed capacity to self sustain oestrogen production.
Hello starry,
I haven't had success from the zoladex injection.
I was getting bad side effects from it.
It stopped my periods which was good.
But the mood swings were terrible.
My other half couldn't cope with me. We was on the verge of splitting up. After 22yrs of been together.
All through an injection.
Now I'm not having the injection my mood is a lot better.
Sam
Xx
Has anyone had shaving of bowel endometriosis?
Endo and the bowel
Surgeon recommending hysterectomy and removal of both ovaries and Fallopian tubes; uterus adhered to bowel
Deep infiltrating endo surgery
