Endometriosis UK

First post and need advice. Thank you xx

This is my first post. I have a laparoscopic procedure on Friday and found out my bowel and bladder are stuck to my womb/uterus via endometriosis. Is anyone out there like me? As I'm scared and emotional to find this out. Apparently to "unstick" my bowel from my womb/uterus is going to be difficult. I would be so grateful to hear from people who have similar to me. I'm 29 and scared. Xx

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Hi, I have suffered from endometriosis since the age of 15, I'm now 37, and awaiting my 8th surgery. I have a large cyst in my left ovary my bowel and ovaries cervix and uterus are covered in endometriosis and one ovary is stuck to my bowel wall apparently, this is why I have been put on Zoledex as its meant to help,improve the condition of my womb and help tame the endometriosis before they perform the op. But I have had lazer on my bowel before to remove cells, and it's a straight forward op, obviously there are risks, as in any op. It's difficult because they can only remove the cells they can see, so it may need to be repeated within 6-12 months. I totally understand how scared you are and it's totally normal to be emotional, it's a lot to take in. Make sure you go back to your GP or consultant to talk everything through again, so you understand what treatment they suggest for you. I wrote a list of questions to ask! Your not alone! Stay strong!

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Hey, wow so you have suffered with it for a long time. What annoys me is the doctors come round quick after you are brought back from recovery and I was drugged up to the eye balls on morphine and obviously my mum was there and I tried so hard to take it in but it's also hard for mum to take in too. So I don't remember everything that was said. So I'm going to call my doctors tomorrow to see if they have had the information from the hospital yet. What will kill me is if they take away the chance to have children, that will literally break my heart.

May I ask what the Zoledex is meant to do? It is really scary because deep down I was hoping I didn't have it. I might write a list to ask questions, that's a really good idea thank you. Hope to hear from you. X

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If you are in the UK you must now be referred to a BSGE accredited specialist centre as they deal with the complex cases. There is likely to be endo deep beneath the adhesions that requires skill to excise.

bsge.org.uk/centre/

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Hi Pennie, yes I had similar. My bowel and womb were stuck together. It's important to get referred to someone skilled in treating severe endo. I've had three laparoscopies. The first two were with general gynaecologists who were not skilled enough to separate my bowel from my womb. My third lap was with an excision specialist and he was able to separate them.

I totally get your worries because I was scared as well. Be sure to talk to your surgeon about your concerns and let them know that it's important to you to preserve your fertility.

Best of luck x

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I am also 29 and just 4 weeks ago had my first lap. None of my internal scans showed this but when they begun to operate they found my ovary has flipped over on itself and attached itself to the bowel. They weren't prepared to find that so surgery took longer. It didn't really effect my recovery, apart from pain when I went to the bathroom, but that was only for a few days. I'm happy to know everything is back where it belongs now.

You are in really good care. Stay strong. I was an absolute ball of anxiousness for weeks before my surgery just because of my fear of hospitals but 4 weeks on, I am so thankful I just got on with it and actually know what's going on in my body.

You will just fine lovely! I would recommend using this forum flr guidance and support as much as possible, it's helped me so much.

I would make a post a week out from your op to get some tips for the day, going home, recovery ect!

Sending you so much love! You have support on this page :)

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Hi Pennie, I'm 22 and had a laparoscopy in February to unstick my uterus, bladder and ovaries. Surgery is scary and so much information is fired at you. But I would say take time to come to terms with it and recover in your own time as you know your body best. Be kind to yourself, you aren't alone :)

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Hi char, wow that's a big thing at 22, I'm hating it at 29. How long did your surgery take to unstick? Apparently my bowel is going to be the most difficult to unstick. How long did it take you to recover after the unsticking surgery? Thanks for writing to me. Xx

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Hey, I know I feel like an old lady! It took 2 and a half hours. After my op I rushed back to uni and ended up a crying mess. I'd been so focused on the surgery I forgot that my now very confused organs would need time to adjust and work properly again. I'd say take a good month off and after that go easy on yourself mentally and physically. Doctors often talk so matter of fact when it is such an emotional process. Good luck for Friday and message again if you need to xx

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