Is endo hereditary?: My 15 year old... - Endometriosis UK

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Is endo hereditary?

Sarah1979 profile image
10 Replies

My 15 year old daughter is showing the same symptoms as me. She has very heavy painful periods with clots and also has cramps during ovulation.

The dr has prescribed her the pill which has taken all the pain away and made her flow lighter but has told me that endo is not hereditary.

I'm inclined to think it is - what do you ladies think?

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Sarah1979 profile image
Sarah1979
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10 Replies
Worzel profile image
Worzel

I was reading something yesterday - not sure what website - but it did say that you are more likely to develop endo if your close family members have it. Lets hope she hasn't, wouldn't wish this on anyone!

x

Iona_Roberts profile image
Iona_Roberts

Hi Sarah, I would definately say it is. My 17 yr old was diagnosed three years ago with endo, and has had three operations sonfar! My youngest who is 15 at the moment has just been diagnosed last week with endo! Its the worst thing ever seeing your daughters go through this pain. I hope she's not developing it, worth getting seen by a gyne to discuss. Xx

Emmashead profile image
Emmashead

It is hereditary, but its not always passed down xx

jojo777 profile image
jojo777

It seems to be common in families but thats not always the case, my mum, sister, cousins and grandmothers dont have endo, its only me that has.

I guess I'm starting the 'trend' in this family..oh well... x

Cloudyrain profile image
Cloudyrain

Like anything "genetic" it isn't always passed on, but people can be "carriers" and pass it on without knowing it. My mum had it bad and I'm following her, although her mum didn't have ot. I started with endo symptoms at 13 and was on the pill for most of the time until my mid 20s: they didn't even consider investigating my endo until I was 28. Although getting a diagnosis early might not seem good it gives people the chance to make educated decisions: e.g. Going on the pill, having a family.

Good luck to your daughters ladies x

jane39 profile image
jane39

Im the only one in my family to have it although my gran, mum and sister have heavy periods. I have a 19 year old daughter who's had heavy periods since she was 14 so she had a scan and laparoscopy to rule out endometriosis since the drs knew my history and thankfully it all came back clear.

Keep an eye on her, if anymore symptons develope take her back to drs and push for laparoscopy to rule it out. It is better being safe than sorry.

Wishing your daughters well and free x

wp22 profile image
wp22

It can be I believe but I am the only one in my family and have a huge family, but I wasn't born with it I only have had it for 5years. I know when I got mine. But if my daughter had it I would definitely know the signs. Can you afford to get private insurance for her and then get her seen with a proper endo specialist that way. That is what I would do for my daughter sooner rather than later. Isn't it just so horrible for her, I am sorry she should have to suffer so young X

Katt profile image
Katt

I believe it is. My mum had such a terrible time when she was younger. She could neverleave the house during her period and was diagnosed with IBS.then coeliacs disease. She had a hysterectomy at 38. The biggest problem was thatendo was not really known about then so she was never officially diagnosed with that. Interestingly her coeliac condition went after the op and drs couldn't explain why! I am a biologists and honestly believe there is a link but drs can't say its hereditary because there is not enough data from the past to link it yet. Take care x

synnova96 profile image
synnova96

I have a cousin who has endo and my aunt used to be bedridden by periods so sounds like she could have had it too. I have taken part in some research which is doing gene testing to investigate this.see

endtoendo.com/Endometriosis...

meme2 profile image
meme2

I feel sure it is. My mother had it, I have it quite badly, my daughters both have it . Please get her checked as soon as possible, the earlier she starts treatment the better. My youngest daughter keeps hers under control with a rod but my other daughters left it and have terrible problems.

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