Endo in bowel..

[girli1111]

I have grade 4 endo, and had my second ovary removed during surgery last week, I've had extensive adhesiolysis done but was told that my bowl is still stuck behind my uterus and attached to the pelvic wall and that I almost certainly have endo growing into my bowel which may require further surgery with a colorectal team in attendance. As I'm no longer producing oestrogen because I have no ovaries I'm hoping that the endo will shrink. I'd be interested to know if others have experience of anything similar and what hasn't been your outcome, thanks.x.

[Hidden]

I had similar disease with obliterated pouch of douglas and a large rectovaginal nodule sticking my bowel and uterus together. I also had disease on my bladder and up around my left ureter, and it was on the uterosacral ligaments/ovaries/tubes. I had the bowel endo excised 11 weeks ago and also had a hysterectomy at the same time because I had adenomyosis. I was warned of the possibility of a bowel resection but in the end they were able to shave the endo off the bowel. My bowel symptoms are much improved and so far the outcome seems positive.

[girli1111 in reply to Hidden]

Thanks for reply, adenomyosis was also a finding for me, does this make hysterectomy inevitable eventually do you know? I had an endometrial ablation two years ago but adenomyosis was not mentioned at all then. I'm now under the care of a specialist team in another hospital who seem to have been very skilled in surgery , and who will follow up with me in a couple of months

[Hidden in reply to girli1111]

My understanding is that a hysterectomy is considered definitive treatment for adenomyosis, but something like a mirena can also be very helpful. I had very severe disease and the adenomyosis was only a small part of it - the consultant basically said that it was technically possible to excise the bowel endo without the hysterectomy, but that if they did this, the raw surfaces left on the bowel and uterus would stick together as they healed, effectively gluing my uterus back to my bowel with scar tissue. If I then needed a hysterectomy further down the line I wouldn't be able to have one because cutting into the bowel for a second time would be too risky. If you have adenomyosis it may well be something they ask you to consider but it is your choice at the end of the day.

[girli1111]

Excuse my nonsensical typos in original post!