Feeling lost

[Smellor86]

My first post, I am just feeling so lost at the moment. Any advise direction would be appreciated.

I was diagnosed with severe endometriosis after a laproscopy where the removed a chocolate cyst but did not remove the endometriosis. It was shown that I have a hydrosalphinx on one of my tubes and that my bowels are affected. This was done by a gynae department. I had an mri and scans. They tried to refer me to my local BSGE for surgery. As they agreed this was the best solution as I did not want to take any format of contraception. Me and my husband have been trying to conceive for 8 years (I'm 30) and had 2 failed ICSI rounds (pre tests did not indicate and issues). The BSGE consultant will not see me until I have tried the medication even though the gynae surgeon has been pushing back saying this is the best option for me and if the BSGE won't take me he will find the correct bowel and gynae surgeons to complete the operation.

I really don't know what is best I am in a lot of pain and suffering with fatigue and just general life (I know a lot of you guys are the same) I just feel lost in limbo have I missed something I should be doing? How can I help the pain and am I best giving in so I can maybe get referred to the BSGE consultant after a years medication? I'm just lost!

[Bee-74]

Hey there...

I feel your frustration.. Im certainly no expert, but felt compelled to reply.

Try to find an alternative Bsge clinic... it's really up to you if you don't want to take medication, especially if you want to conceive.

I'm not familiar with Hydrosalphinx, but surely this shouldn't be left untreated. this may be why the Bsge specialist is suggesting the more 'conservative' treatment? . I would fight for a 2nd opinion, your perfectly in your right. check the Bsge web site, find an alternative one? Use the Nhs e-referral service.

best of luck and Don't give up xx Big hug

[Smellor86 in reply to Bee-74]

Thank you.

[Bee-74 in reply to Smellor86]

xx