Hope you're all doing well.
Just looking for some advice as I'm kind of losing it. Apologies for the very long post.
Had Total Pelvic Peritoneal Excision surgery 31/10/2014, was told it all went well but had to be kept in overnight due to extreme pain around the stitches below my bikini line, left hand side. This pain was flooring me whenever I tried to move or walk. The specialist apologised as he said he'd "never had anyone with this post op complication before".
When I was discharged home, I noticed that the same pains were very mildly on my right hand side, but didn't tell the nurses, nor say how bad the left still was, I just wanted to go home (3hr 40mins away). I thought it may have been everything settling down from where he corrected my retroverted uterus.
I've tried getting back to normal, long walks etc, even dancing, but if I'm active for more than 10/15 minutes, the excruciating pain comes back on my left side.
I've spoken to the specialist who has said that it is a problem with my ligament and nerves, which may either go away in its own time, or could be a permanent feature.
On top of this, nearly 11 weeks post op and I'm still experiencing endo-like pains. Stomach is still bloated and bleeding through the mirena coil.
I know everyone heals differently, I know that with adenomyosis (diagnosed by specialist - very bulky uterus etc), the pains may not completely go away. I also know that this operation may not work as well as it does on other people (as informed by the specialist), but starting to worry that I'm almost 25 years old, spent £6k for a treatment, and almost out of options again, as well as dealing with new pains, which may, or may not go away, as a result of the op I've just had.
I've tried to stay positive, but really struggling at the moment & don't know what to do anymore.