Lindle knows best - lap completed :)

When I first posted here Lindle suggested I see an endo centre as my symptoms suggested endo in the Pouch of Douglas. After going round the houses I had a lap at Birmingham Endo Centre today. The plan was to remove left ovary and tube as ultrasound suggested pelvic congestion. They did this, removed adhesions, disconnected my right tube/ovary as it was messy round there (bit unclear, why do they talk to you just as you come round?). Dr also found endo in the Pouch of Douglas just as Lindle suggested. This was removed diathermically. I went to surgery just after 9am and was home by 2. I have pain but really from the incision sites more than anything and am hoping that this puts an end to my constant pain. The biggest downside is that I cannot stop needing a wee! I don't know if this is the gas pressing on things or if surgery has upset my bladder.

Rule of thumb ladies - listen to Lindle!

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  • Lindle is a lovely woman, the advice she gave me on here was fantastic, I tell anyone that listens about the help she gave me and my husband, she knows more than what the gps and consultants no.

    Thank you once again Lindle your a wonderful person X x

  • Hi just so you are aware, Lindle's posts on here about pouch of douglas endometriosis are rather confusing. POD is the most common area for endo to be found anyway, they call it "cul-de-sac" in America, this link shows distribution endo: endopaedia.info/origin34.html

    Just having endometriosis in POD also doesn't mean you have "true" rectovaginal disease, as most of the time it's superficial disease. Superficial rectovaginal disease isn't really "rectovaginal" because it only involves the peritoneum overlying these structures.

    Hope your bladder calms down soon, and your recovery goes well. Fyi I would be inclined to double check with your consultant (so you know for future) which technique was used to remove the endo - as it should be excised if at all possible. They "shouldn't" really be using diathermy in the endo centres.

  • Glad your surgery went well. After my lap I kept weeing, every 2 hours on the dot I would be hobbling to the bathroom. Even when I was asleep I would wake every two hours. This only lasted a day. X

  • It was pretty much every half hour but gradually calmed down. I'm very sore and stiff but baths help. I move like an old lady. Hospital gave me only a week sick note so I've booked in at my GP for next week as I know I will need more time than that! Heck I need a nap after cleaning my teeth! My body seems to be so busy healing my mind has switched off.

  • Hi! Firstly, let me say I really hope your recovery is swift and smooth and that you have no more issues! However, I have to admit I am slightly concerned re your mentioning diathermy, hun...I can't imagine Lindle would advocate burning under any circumstances - forgive me if I am mistaken.

    I am curious as to whether it was one of the named, accredited specialists at the centre who performed your procedure. It's worth realising that the centres exist INSIDE 'normal' hospitals, with regular gynaes as well as the specialists - so, with your mention of diathermy, I can't help but wonder if your procedure was done by one of those, or by a regular gynae?

    In any case, as I say, I hope this does put an end to your pain - but please keep an eye on things. If you find symptoms recurring, do ensure you have excision performed next time. All being well, your symptoms never recur!

    Best wishes for your recovery, and long, happy, pain-free future.

  • It was the named consultant at the endo centre that did the surgery. The diathermy was what the nurse who discharged me read of my notes. I was under the impression that you can excise with Diathermy. Either way I was treated by a specialist who I can only assume knows what he is doing. I think it may be a slow recovery, I am still pretty much bed bound as I can only sit on the sofa for a couple of hours and standing is not good.

  • Hi hun!

    There is so much confusion around the terminology, I'm not surprised you're confused...Maybe your nurse meant that a laser was used as the TOOL. If the laser is set to create 'high-energy' then it CAN be used to excise, but it's not called diathermy or ablation, it's still called excision. It's confusing because if the laser is 'low energy' then it would not be excision, but burning.

    Anyway, fingers crossed none of this matters and you never have to go near a hospital for endo. treatment ever again!

    I will continue to send you well wishes for a permanent recovery, even if it is slow, lol!

    Take it easy, and don't hesitate to get back here if you find you're experiencing any recurrence of symptoms.

  • I have only just seen this post as I was out of the country for two weeks at the time and unable to keep in touch with the forum. So thank you so much for your kind words. In reply to the concerns expressed about diathermy I would advise getting a copy of the surgical report from your GP to see what was involved and done to ensure your endo was excised as required by the NHS contract. Your history of constant left-sided pelvic pain, stabbing pains, IBS symptoms and previously confirmed bowel adhesions/distorted bowel anatomy strongly suggested rectovaginal endo and not superficial endo in the POD and I do hope you get some relief now.

    I am not sure what point Arcadia is making as my post she refers to is entitled 'Rectovaginal endometriosis in the Pouch of Douglas'. Rectovaginal endo is the most complex and challenging there is and is found in the Pouch of Douglas, with obliteration of the pouch (partial or complete). So my post is about rectovaginal endometriosis not superficial pouch of douglas endometriosis as she seems to suggest. This seems clear enough.

    The source she always quotes as evidence is Endopaedia which is the personal website of one retired laparoscopic surgeon containing articles giving what are often his subjective opinions on issues such as pathogenesis that do not represent independent evidence and are often contrary to accepted scientific opinion. However, as an ex laparoscopic surgeon his information on issues relating to surgery can be expected to be highly reliable and most informative. An article by Jeremy Wright (who brought excision surgery to the UK) that is posted on Endopaedia confirms what I say about rectovaginal endo with obliteration of the POD being the most complex so, since this is confirmed on the site she herself always quotes as evidence, then why she finds it misleading I am not sure.

    endopaedia.info/subtype14.html

    x

  • when I had the stitches removed there was nothing at the Drs from the hospital so I'll check that in Jan when I get my bloods done. I am feeling so much better now, no stabbing pains and just general tiredness and aches where they went in to work, getting better every day :)

  • DEAR LINDLE SHOULS I MEET DR TREHAN IMMEDIATELY ?PLS REPLY

    I'M SUFFERING FROM CHRONIC PELVIC pain/EVERYDAY PAIN , severe ovulation pain -stabbing pain from ovaries at the time of ovulation , vulva burning , itching , rectal stabbing -severe uterine cramps -, pain from cervix ,this is going on for 4 years . I had Mri , CT -no endometriosis found .I had a D-lap done last month and was shocked to be told by my obgyn that my pelvic region is clear-no evidence of endometriosis -no biopsy was done .Uterus is of normal size-no enlargement . My bleeding pattern is normal -no clots or heavy menstruation but I deal with the most severest pain especially 10 days before menstruation -but my pain is present even after periods , it's just that it becomes very severe 10 days before the next periods . The debilitating pain i live with has destroyed my life .Ii;m in bed most of the time , I worked as french teacher and translator and i had to stop all my work .

    After doing a lot of research on my own , i found Dr Trehan 's website and i'm in touch with him ,.He saw my d-lap pictures and said uterus is tilted-retroverted (mri too confirmed it ) and may be early stage endometriosis .He has seen many cases with negative lap for endo and gone on to find extensive disease after sending samples for biopsy . I'M UNMARRIED AND have NO KIDS only daughter to my parents -and i'm from india ..When i spoke to my ob -gyn though not an endo expert, said it could be adenomyosis . My Mri shows no enlargement of the uterus and i do'nt have heavy bleeding .Do you think i may be having microscopic endometriosis?Dr T wants me to undergo a D-lap with him again. I did read a lot about adenomyosis in endopedia and Dr David Redwine 's website -in America the endo experts do'nt believe in microscopic endo-not seen in laprocopy and they conviniently diagnose it as adenomyosis as they feel hyster is the only way to confirm it . I was very upset with the american specialists and want to meet Dr T and i hope TPE can sove my problem . Could you please tell from my symtoms if i may be having endometriosis ? I read from your posts that you too had a negative lap for endo and did you suffer severe pain like me ?

    I 'd be very happy if you could reply to me at the earliest I i would like to be in touch with you till i recover .-WARM REGARDS PINKYPOP

  • DEAR LINDLE SHOULD I MEET DR TREHAN IMMEDIATELY ?PLS REPLY

    I'M SUFFERING FROM CHRONIC PELVIC pain/EVERYDAY PAIN , severe ovulation pain -stabbing pain from ovaries at the time of ovulation , vulva burning , itching , rectal stabbing -severe uterine cramps -, pain from cervix ,this is going on for 4 years . I had Mri , CT -no endometriosis found .I had a D-lap done last month and was shocked to be told by my obgyn that my pelvic region is clear-no evidence of endometriosis -no biopsy was done .Uterus is of normal size-no enlargement . My bleeding pattern is normal -no clots or heavy menstruation but I deal with the most severest pain especially 10 days before menstruation -but my pain is present even after periods , it's just that it becomes very severe 10 days before the next periods . The debilitating pain i live with has destroyed my life .Ii;m in bed most of the time , I worked as french teacher and translator and i had to stop all my work .

    After doing a lot of research on my own , i found Dr Trehan 's website and i'm in touch with him ,.He saw my d-lap pictures and said uterus is tilted-retroverted (mri too confirmed it ) and may be early stage endometriosis .He has seen many cases with negative lap for endo and gone on to find extensive disease after sending samples for biopsy . I'M UNMARRIED AND have NO KIDS only daughter to my parents -and i'm from india ..When i spoke to my ob -gyn though not an endo expert, said it could be adenomyosis . My Mri shows no enlargement of the uterus and i do'nt have heavy bleeding .Do you think i may be having microscopic endometriosis?Dr T wants me to undergo a D-lap with him again. I did read a lot about adenomyosis in endopedia and Dr David Redwine 's website -in America the endo experts do'nt believe in microscopic endo-not seen in laprocopy and they conviniently diagnose it as adenomyosis as they feel hyster is the only way to confirm it . I was very upset with the american specialists and want to meet Dr T and i hope TPE can sove my problem . Could you please tell from my symtoms if i may be having endometriosis ? I read from your posts that you too had a negative lap for endo and did you suffer severe pain like me ?

    I 'd be very happy if you could reply to me at the earliest I i would like to be in touch with you till i recover .-WARM REGARDS PINKYPOP

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