Swollen Lymph nodes & Mirena: Let me... - Endometriosis UK

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Swollen Lymph nodes & Mirena

Lithofairy profile image
9 Replies

Let me preface this with "I will call the doc in the morning" but was wondering if anyone else had this experience: I had full excision surgery in October. My cycles have still been rough, so I got the Mirena (as the surgeon also suggested) 5 weeks ago. I've been spotting and cramping every day since. Fine, that's normal. But this morning out of nowhere I woke up and my thighs are SO sore. It hurts to lift my legs and walk. I then realized that ALL the lymph nodes in my groin are swollen up. Nothing else has changed (still spotting but no weird discharge), no fever, no other locations of swollen nodes. I'm going to blame this on the Mirena and it sounds like an infection. Thoughts??

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Lithofairy profile image
Lithofairy
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9 Replies
littlebrownbird profile image
littlebrownbird

You're doing the right thing by going to see your doctor.

Hope they get to the bottom of the problem.

Beckbeee profile image
Beckbeee

I used to suffer with swollen lymph nodes in my under arms quite regularly, I also have endometriosis but not the mirena. I don't actually know what mine was down to as it was very frequent I did get them checked but doctors just said it wasn't any concern but I think they were infections one time my left under arm had a huge lump under the skin like a golf ball, it used to be so painful. I'd definitely get it checked to be on the safe side xx

Billysugger21 profile image
Billysugger21

I've had swollen glands in my neck on and off especially with periods ever since I've had endometriosis. My gynae said it's immune system related and wasn't too worried. I would rule out other things with a full blood count etc just to be on the safe side. My Mirena took over 6 months to settle before I felt better but I'm so glad I had it fitted it's the only thing that has helped apart from zoladex. Take care

Lithofairy profile image
Lithofairy

Thank you all! Beckbeee , Billysugger21 littlebrownbird Still waiting to hear back from doc and hoping it's nothing. Could certainly be an immune response trying to get rid of this foreign object, haha! Glad the Mirena has been helpful for some. I hope it settles soon.

R0551 profile image
R0551

Hi lithofairy. Im 39 and was diagnosed with severe endo over a year ago after surgery. They suggested the marina coil and I had it fitted a few months after being diagnosed. It took a good 12 months for the marina coil to settle into my body. Minus the few complications with having it. I first had problems with tenderness around my boobs and my right underarm feeling a little swollen. I thought it was just hormonal and the doctor told me to stop wearing underwired bras. This did help. I also started wearing a size larger in knickers too which helped any abdominal pain. I feel a lot better today and all that trouble has passed hopefully and I still have the marina. I now wander today if I had a few complications with lymph nodes too but not sure. I hope time heels you and you get better soon. All the best Rachel Xx

Lithofairy profile image
Lithofairy in reply to R0551

Thanks for the kind wishes and hope that it will settle! I wonder if your lumps were also lymph. I wish it didn't take so long as I just want to be better already, but glad there is hope. Best to you too!

cltgirl profile image
cltgirl

I know this is an old post. Since i am planning to start mirena iud for non stop bleeding at age 46 I wanted to know how you are feeling now after 2 years with mirena.

SophV13 profile image
SophV13

Hi! I know this post is old but I had the Kyleena coil put in nearly a year ago and has started to get pain and nipple discharge in both breasts, I’ve been checked for lumps and doctor thinks it’s hormonal, I also feel like my underarms are swollen my anxiety has been through the roof so I’m unsure if this has contributed to my swollen nodes also in my underarms and neck as I know stress can induce this, I’ve spoken to three doctors who all believe that it’s hormonal but I just wondered if anyone else has had this experience with any other coil or hormonal drug?

IvaSliva profile image
IvaSliva

what happen with your case ?

After 2 weeks of having mirena - 2 lymph nodes appeared. Now, 2 months after one more - in the lower stomach area - plus it’s painful, sometimes more sometimes less … annoying def and this is for sure from the mirena. Any suggestion ?

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