Thought I'd share my experience as I was completely unaware of any sort of support networks for Endometriosis!
I was 12 having horrendous pains in which going to the Doctor, I was told 'you have bad period pains' so I continued to go as it came to the point I was missing school as I was in pain. I continued to see my GP that when I did become sexually active, I was reffered to the GUM clinic everytime I said about my period pain, gave them all my symptoms and explained I was being safe but continued to send me there. I felt so embarrassed and felt that I wasnt being listened too especially when my results came back negative every time. I became so emotional with the thought I knew something wasnt right and was offered anti-depressants because I couldnt cope. Throughout this time, I was told 'it cant be Endometriosis because you are too young and usually its heredity'. If I had a pound for the amount of times I was told I was 'too young' to have it, I'd have a lovely big house.
At 16, I couldnt cope with the pain, I was borderline of not being allowed to attend my prom due to my attendence of being off sick so much! I went for a second opinion in which I was sent to the GUM Clinic (again!) results were negative and I was finally reffered. The stigma I recieved as well was horrid, the department I went to was for pregnant ladies, the amount of people who shook their head at me and had said 'your too young to be a mum' just by looking at me. I do remember at 16 when I had an appointment, I was asked about my thoughts on suggested Endometriosis and my thoughts on starting a family.. I was 16! Last year of school and hoping to go to college, and I thought I'd be happy with someone before makig that decision and I was so upset as they spoke about the negative effects of endometriosis and fertility. Throughout the years I was told to take paracetamol and Ibuprofen to relieve the pain but it didnt work in which I told them.
Finally, at 19 I had a laparoscopy in which I was diagnosed with Endometriosis was stage 3. I had the mierra coil put in after the surgery but the relief was unreal. After suffering from 12 and getting an answer at 19! I have had a second operation due to increased pain at 22 and now im 24, last week I was taken into hospital for a ruptured ovarian cyst as well, still informed to take Paracetamol and Ibuprofen. This has been on going that I am completely unsure of what to do now.. Advice would be brilliant and greatly appreciated!
Thankyou in advance