Norethisterone : Has anyone used this to... - Endometriosis UK

Endometriosis UK

72,745 members53,177 posts

Norethisterone

Milton1 profile image
9 Replies

Has anyone used this to help with endo I've posted previously about my history with endo I had surgery 3 months ago to excision and remove a number of endometrial nodules was told should go 3 years pain free well it's been 3 months and bang the pains back ! They've now put me on this 3x daily at 5mg for 6 months but pain is still there are these actually any good ????

Written by
Milton1 profile image
Milton1
To view profiles and participate in discussions please or .
Read more about...
9 Replies

I was given it earlier this year - managed 5 weeks of it then had a pain flare up and was put on cerazette instead. My BSGE consultant said it's not really a great treatment as it tends to cause depression. But I am very much of the mind that everything is worth a shot.

Milton1 profile image
Milton1 in reply to

Yeah I WAs quite surprised as I have post traumatic stress disorder how do you get on with new meds they put you on ?

in reply toMilton1

I have to be honest, I am not finding the cerazette very pleasant. My pain levels are down enough that I can manage my pain at home but I am having a lot of problems with bleeding (4 very heavy periods in 13 weeks plus spotting inbetween). It's also given me bad skin and bloating and I am gaining weight at an alarming rate. I'm also having night sweats. The hosp have told me to expect it to take up to 6 months for the bleeding to settle but have said that it might not given that I've bled on absolutely everything they've tried. I am due for another lap in a couple of weeks when they are going to take me off the cerazette and give me zoladex instead so I am persisting with it but I don't think I could take it long term.

in reply to

I've been on Norethindrone for 5 months and like you the first 5 weeks were bliss, I didn't have to take any pills and then I was hit with pain. I went to my gyno and she didn't give me another option and I saw another one and he told me that I shouldn't be on pain if I'm not having periods and if I'm on it.

I took 2 by accident in September and I somehow had a painfree day.

Can I ask if Cerazette was harder to go on side effect wise?

I just want to say thank you posting this comment! I thought I was going crazy since I was still in pain Xx

in reply to

I am finding the side effects of the cerazette harder but when I was put on the norethisterone I was also on decapeptyl. Now I've been off the decapeptyl a while the hosp have said that my oestrogen levels are back up which is why my daily pain is a lot worse. Generally the cerazette is making me feel pretty crappy :/ but it's a short term fix to try and keep my pain at a level I can manage at home while I wait for surgery.

Yalda profile image
Yalda

Hi, I have severe endometriosis and adenomyosis. I had 3 surgeries. i was prescribed Norethisterone but I didn't find it helpful because I still had pain. However it helped my bleeding.

I found Zoledax more helpful.

Milton1 profile image
Milton1

To be honest I don't know why they've put me on it I don't have periods and it certainly don't help pain wise docs drive me nuts !! I'm so sorry to hear that I hope you feel bit more pain free soon

I've been on 5mg of it for 5 months, the first month was amazing, I wasn't taking painkillers or anything and then I got a kidney infection and it all went downhill from there since I'm now in pain everyday.

However I once took 2 pills (by accident) and I was pain free it was amazing.

Milton1 profile image
Milton1 in reply to

Lol the end bit made me chuckle I've only been on it a week so will keep going thanks

Not what you're looking for?

You may also like...

Norethisterone

Anyone on this? was put on it because im in agony for about 2 months now with pain in lower right...
kayjayne profile image

Norethisterone

Hi all hope everyone is well! Just needed a bit of advice about using norethisterone long-term. I...
SK2021 profile image

Norethisterone

Hi all, Hope you are all having an fairly good day. Im now week 3 of another awfull bout 😢😢Been...
Jenaust1985 profile image

Norethisterone

Has anybody ever taken this to stop long term bleeding? I'm taking it and I just seem to be in...
hanz_hx profile image

Has anyone tried Norethisterone?

Hey, I've just been to the doctors and feel like I'm going round in circles again. It's been 5...
princessk09 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.