Prescribed amitryplylene...

[Fmcdonald93]

Hi everyone, had my post op appointment today with my consultant, I complained that my symptoms have only got worse since surgery. He quickly palmed it off and explained the size of the inflamed endometriosis was so small he couldn't understand why I had pain. Any way he prescribed me with Amitryplylene, I am trying to get pregnant and find regular sex so painful, he said that this would put me in my very own 'zone' (rather concerning coming from a doctor)... has anyone else been persciribed this and what do you think? I've done some research and I'm very uncertain. Any feedback would be very appreciated.. thank you

[amy-28]

Hi i was prescribed this about 4 weeks ago now after being in a&e with my pain and it has helped loads with my pain and helping me sleep, i did make me feel a bit sleepy and zombie like the first week but its been worth it as its the only thing thats touched the side for my pain lately. xx

[JessieP]

Hi,

I was prescribed it when I broke my back and was in the worst pain of my life, worse than 2 c sections gone wrong & endo x1000. I was unable to sleep due to pain & this really helped. It was also crucial when I was ready to learn to walk again & have any physio - esp after physio.

My life line for sure. Drs slowly lowered dose when I was ready to sit in a car as a passenger & try journeys (one of the last things I was able to master) I was on lowest dose when I was able to drive again. Now only use it for v. long journeys at lose dose.

Dont underestimate it's use for pain management.

Hope it works for you, worth a try right?

Jx

[GrittyReads]

What dose of amitriptyline has been suggested? I find any more than half a 10mg tablet leaves me feeling zombie-like. However, it was good - and I took a whole tablet! - when I had terrible pain with costochondritis. It was originally marketed as an antidepressant - doses starting at 45mg and going up & up! - but is rarely used for that now; but it is used for: migraine, fibromyalgia, and insomnia (my problem). I find 1/3 of 10mg allows me to sleep through the worst of my 'incendiary' menopausal hot-flushes, at night, and my GP suggested breaking it up - even to a powder - until I found what amount helped me sleep, without making me dozy the next day.

As for your consultant - I'm sorry ... but for him to suggest that the small amount of endo could not be causing your pain is nonsense. It depends what type of Endo tissue - there are several different types - and where exactly it was. Also, it depends if it was all removed, and how it was removed.

Is your consultant a fully trained 'Endometriosis Specialist' or is he just a general gynaecologist? If you are in the UK (and especially if your pain stays) you need to ask your GP to refer you to an Endo Specialist at one of the BSGE Centres in the Country. Contact 'Endo UK' who run this site - you will find a link to their website at the top of the page. You will then find details to contact their advisors, as well as info on the site about BSGE Centres.

I hope this helps.

[Milton1 in reply to GrittyReads]

Sorry for jumping in , I was just wondering what is bsge centre ? just because I have a endo specialist and he is amazing but he has never mentioned this to me and I've asked him is there anywhere else I can go to seek out further treatments ,

[GrittyReads in reply to Milton1]

Hi Milton1,

If you are in the England (not sure about other parts of the UK), there are quite a few 'Specialist Endo Centres' around the country. They are often sited within existing NHS hospitals, and the teams that work in these 'BSGE' Centres specialise in the treatment of endometriosis. The surgeons, in particular, are specially trained and skilled in performing laparoscopies and making sure they examine all parts of the abdominal cavity - even the 'hard-to-get' places that less specialist gynaecologists have trouble accessing. They spot and note all kinds of endometrial tissue - there are several different types, and some of the less obvious types are often missed by non-Endo Gynaes. Finally when it come to removal of Endo tissue, the BSGE gynaes are far more skilled in the removal of Endo tissues - again, less experienced general gynaes may not be able to perform some removals as it involves risk of damage to bowels and uterus ligaments etc. BSGE Centres usually have bowel, bladder etc. expert surgeons available.

If you are in the UK, you may be lucky and have a gynaecologist who knows his stuff. However, if you read these pages regularly you will see that many of the posts on here are from women who have not been passed onto BSGE Centres by their GPs. There is a strict protocol for referrals to BSGE Clinics for women with problematic Endo, which I believe GPs and non-Endo specialist gynaes are supposed to follow, but it does seem that many of the posters on this site have been treated by non-Endo specialists, and have to keep returning, because what has been done has not removed all Endo and it quickly grows back.

'Endo UK' (link to their site at the top of the page) should tell you all about this, if you phone or email. There is also a link on their site about BSGE Centres, so that you can see if there is one near you, but we are not allowed to mention any by name.

I hope this helps. I would also read around on the site, and in particular read the past posts on here by Lindle, as she is extremely knowledgeable about all aspects of Endo and the BSGE system.

[Milton1 in reply to GrittyReads]

Thank you so much this is very helpful I will def look into this