Hi, I'm looking for some advice. I was diagnosed with endometriosis in 1987; my gynaecologist had no idea what was the matter and decided that to rule everything out they would carry out a laparoscopy. I had a huge cist on my ovary and pelvis, I was riddled with chocolate cists and my womb had dropped. although devastated I was also elated, I had a diagnosis, I was not neurotic!!! I was 19 years old and was married 12 days before the surgery. I was prescribed Danazol, 4 months and 4 stone later, it was agreed it hadn't helped so I had a laparotomy and Gilians ( I think that what it was called, my womb was lifted) the cist was cut away, chocolate cist burnt away and my womb lifted. Throughout all this time the best advice I could be given was to get pregnant it will make everything better, I chose not to at the time and went on the pill, I then underwent more tests to see how things were and was told that I was no longer able to fall pregnant, but I stayed on the pill to be sure. I year later I was pregnant!!! (My beautiful daughter turned 26 today, I count myself very lucky) Pregnancy however did not make things better, it was worse, so when my baby was 2 I had a hysterectomy. They took everything except my right ovary, I was 24 years old. Over the years I have suffered many different symptoms that scream endometriosis and I have been able to see how much the diagnosis and treatment of endometriosis has improved. But to that end over the past few years my bowel, bladder, lower back and abdominal pain have become unbearable. so back to the Drs I go. After jumping through every hoop that the NHS puts in my way I eventually get in front of a gynaecologist who tells me its all unlikely to be endometriosis because I have no womb!!! In fact I was told " you have no womb to make the endometrium dear", I tried hard to challenge him and suggested that yes I think it was. I have left waiting for an MRI but feel totally deflated how do I make my 'living in the dark ages' consultant realise that he's wrong and I'm more than likely right??
thank you for taking time to read my rant, I so needed to offload.