Sever endo 16 years post hysterectomy

[Joonaspryte]

I am 58 and had a total hysterectomy 16 years ago, because I was told I had extremely bad pelvic inflammatory disease.

now after years and years of problems, bladder, bowels ( from which I also bleed a lot) , etc. i had an appendectomy where endometriosis was found on the appendix. I have since developed symptoms of thoracic endometriosis,.

Somewhere along my journey, I ending up keeping a letter meant for my GP, so I opened it, and discovered that I was also had had ademioma , seen after the hysterectomy,which I had never been told about.

My gynaecologist has told me to stop hrt as she says I will endometriosis in my pelvis and probably Bowles, I’ve just has a very very painful colonoscopy, where he said my bowels are stuck together. She also said she will see me in 12 months ,

When I came off the hrt, I went into severe depression which made me having silly thoughts and still having t

All endo symptoms, the gp put me on hrt patches, which have helped but I know gynaecologist won’t be too happy about. But to be honest, telling me to come back in 12 months, I don’t not think this is good enough.

I would love anybody’s thoughts. 😊😊😊

[Sunset-lady]

God you poor woman. This is awful and made so much worse by them just packing you off without HRT 💔 and expecting you to be fine. I've tried coming off HRT and I know those intrusive, scary, batshit, crazy thoughts you have and the catastrophic thinking that intrudes your day and takes over- you feel mad. I don't know what to suggest which is why your post floored me. A lot of us on here pray that a hysterectomy will be the answer but we know that endometriosis is a life long disease and it makes its own estrogen. Which is why coming off HRT is not the answer either although they probably think it' exacerbating the situation. I would perhaps explore a few things. Get in touch with Endometriosis UK and ask their advice. Ring your consultant's secretary and complain. You can put in a more formal complaint through PALS. You could see an endo specialist privately (I'm presuming you're under a specialist centre - if not, you MUST). You can get some anti depressants from your doctor which WILL help and you need that mental support right now or try the natural route through herbs. You may want to explore the work of Ray Peat and try progesterone therapy. There's a Facebook page called Balancing Hormones run by an amazing woman called Gemma whose story started post hysterectomy. I'm sending so much love and hope you get on the right track. Xxx

[Sunset-lady in reply to Sunset-lady]

Also explore estrogen dominance xxx