Hi! I'm new here and was looking for information on endo and associated cysts.
Since I was 18 years old I have been having admissions to hospital for 'non specific pelvic pain'. At 19 I had my first lap and was told I had endo and I may never have children because of it. Then I was discharged with no follow up.
Over the years I have had many admissions which usually resulted in ultrasound scan with consultant then telling me I was constipated and discharging me with laxatives. For a long time I was thinking that I was just some sort of wimp or hypochondriac because usually after the pain, I would start a period.
I went on to have two children with very complicated pregnancies.
Around 4 years ago I had my womb removed as hysterectomy because I was only getting 3-4 days between periods. And I have always suffered terribly with painful periods and migraine before and after. This meant if I wasn't having a migraine, I was bleeding.
On Monday evening of this week I had sudden onset of pain. By Tuesday afternoon, I couldn't stand up and called the GP, who came to my house. On examination she was concerned it may be my appendix (how many times have I heard that?!) and admitted me to the acute surgical unit.
Thankfully I had a wonderful consultant pop in who decided that I should be taken to theatre for investigative lap. Consent included possible removal of appendix or ovarian cyst (if either were the cause).
I woke up with a serious amount of pain, more than before, to be told my appendix was fine but I would be getting sent to the gynae ward. The gynae consultant had some lovely colour photos from my lap which shows my bladder, ovaries, omentum, and pelvic wall all covered with chocolate cysts. There is one large one which has adhered to the pouch of Douglas and part of my rectum. All this has been caused by endo. I have had a look online to see how common this is and I can't seem to find any images which show as many cysts as mine seem to.
I've been given an implant to kick start the menopause (a family record at 43!) by 'turning off' my ovaries. I've been told I will see my new endo consultant in around 4 weeks to discuss having ooferectomy (not sure if that's how to spell it), cervix and cysts removed. He will also give me biopsy results. I am a bit worried about this.
I may be being paranoid but I have good reason. My friend is currently in the final stages of ovarian cancer with only weeks to live. So please excuse me for being over anxious.
Have any of you had similar experiences? Or have you had this surgery? I'm still in a hell of a lot of pain, and SO tired and my op was now 4 days ago. How much worse and longer is it going to take? And what about the bigger op? Will I be ill for a long time?
Any advice or anyone going through the same please get in touch?
Many thanks and gentle hugs