I was diagnosed with Endometriosis in 2011 - which was when I had my first lap. I had been experiencing really obvious symptoms for over nine years before this, but doctors kept getting my diagnosis wrong.
In the nine years whilst I was waiting for a correct diagnosis, doctors attempted to fob me off with all sorts of hormone medications. First, I was advised to take the Pill - which I refused to do. I had heavy, irregular and painful periods as a teenager, and I tried the Pill then. It was hoped that it could "regulate" my periods - nobody bothered looking into the cause of the period problems! Just give me the Pill, and hope I'll go away. Well, I tried first Dianette, then Marvelon. I gave them up due to intolerable side-effects that included bloating, water-retention, feeling moody, and spots (which are all things that most teenage women SO DO NOT WANT!).
I was also made to try the Mirena coil device sometime @ 2008. I can honestly say that I hated this Mirena! Insertion was really painful - it was done in a Gynae outpatient clinic. I was offered NO pain relief whatsoever. The Mirena did nothing at all to help ease my symptoms. I still has breakthrough bleeding which was on occasions pretty heavy, bordering on flooding (which was one of the symptoms of my period problems that I MOST wanted rid of!). Not long after insertion, the Mirena dislodged and slipped. I could actually feel this as a sharp, dragging pain. After this, I demanded to have it removed but when I went to the G.P. to ask this, I was treated like a naughty schoolgirl. The G.P. kept insisting that I "keep trying with the Mirena as you have to have it for at least 6 months". Well, I did NOT want it at all, especially because it had slipped. So out it came (another very uncomfortable experience)!
I then managed up until my lap with NO hormone treatment at all. I am aware that under such circumstances you get the FULL effect of your Endo symptoms, but as far as I was concerned, this was something I had to put up with. My symptoms were NOT in the least bit pleasant - I have DEEP INFILTRATING ENDO, so the pain is absolutely hideous! I also had bowel symptoms, fatigue, cramping, bloating, water-retention, flooding, heavy and clotty periods... NOT in the least bit nice. However, I do feel that if I had allowed doctors to keep giving me medication that masked my symptoms (but still allowed Endo to grow), I would NOT even have had my Endo diagnosed. Instead, they could have fobbed me off forever! It was only because I clearly recorded ALL my symptoms in a diary and kept arguing my case that I believe I got referred for a lap.
After the first lap, I ended up having 3 more! Inbetween, they wanted me to try things like Zoladex or Prostrap. I point blank refuse to take hormone treatments now. This is part due to side-effects, which I do not care for. My feeling is that it is stupid to trade the symptoms of Endo for the side-effects of medication that does NOT remove Endo. As far as I am concerned, only surgery is effective. However, it is also partly due to the belief that being given hormone treatment equals being fobbed off. My feeling - and experience - has always been that if you accept hormone treatments it leads to delays in diagnosis, or delays in surgical treatments. Doctors just seem to think they can get you to accept hormone treatments INDEFINITELY, which is NOT good.
This is my opinion, for what it's worth. The choice is really up to YOU to decide what to do. If I were you, I'd be contacting the hospital to ask why they are delaying your surgery. I will inform you (because I am an ex-Social Worker who worked in a Hospital Team) that there are STRICT RULES concerning CANCELLATIONS OF SURGERY which YOUR hospital is BREAKING. The rule is this...
Department of Health says ALL patients who have their operations cancelled for non clinical reasons on the day of surgery are to be offered a further date for surgery NO MORE than 28 days following the date of cancellation. If this cannot be done, then the hospital can be asked to FUND treatment elsewhere. (For more information on this rule, read institute.nhs.uk/quality_an...
This is also included in the PATIENT'S CHARTER, so maybe you could tell your hospital this!
Anyhow, best wishes and I hope you get this all sorted out to suit you. E. x