Urgh!

[applerhino65]

I have been getting pain on my right side for a few years. Got heavy periods which affects my iron levels. So tired - it has had an effect on all elements of my life. Went and saw the gyno after such a long wait. He wasn't very nice as I didn't want a mirena coil fitted. (Have heard mixed things about it from friends and relatives). But he has agreed I need a laparoscopy and a hypnoscopy. The thing is he planted a seed of doubt in my mind that it may not be Endo. My GP believes it is. But he said it could be my bowel?! I was so upset yesterday as I have been in pain for four years.

Has any one experienced this and found it is Endo? I have done a few scans and nothing has been seen in them? Is this common?

And also are both procedures painful? I am so scared. Thank you so much xx

[Hidden]

Hiya which part of the country are you in? What are your blood results in general such as crp and lymphocytes.

I've experienced exactly the same as you - I did have endometriosis. My last operation was a hysterectomy in April this year and I still have the same pain on the right side in fact it feels worse.

Have you had a MRI and are being seen at a bsge centre?

Claire xx

[applerhino65]

Hi Claire,

Thank you so much for replying. I have had a high CRP reading and am based in London.

Did you have a lap and hystroscopy? I wasn't offered an MRI and am just being seen at my local nhs hospital.

xx

[Minnie1128]

Hi, my diagnosis also started with right sided pain on most days for 18m before diagnosis, I did have pain with intercourse though.

My periods have always been regular and not particularly heavy or painful either.

I had a few scans before I got referred to gynae pelvic us, tv us x 2 and hip X-ray. On my bloods I had a high crp and a really high ca 125 which got me referred to gynae oncology - I was seen and had Mri within 2 weeks. Nothing except a cyst on my ovary showed up on any of the scans.

Since then I have had a diagnostic lap in a local hospital and then a second lap and hysteroscopy at a bsge centre last month. The lap is uncomfortable post but I was ok on paracetamol and ibuprofen despite taking stronger pain relief prior to surgery. If you are having a lap the hysteroscopy should be done while you are asleep so you won't feel it.

Endo can effect the bowel too so I wouldn't be upset and GPs don't know very much about endometriosis.

I too am in London.

Hope this helps x

[applerhino65 in reply to Minnie1128]

Hi Minnie,

Thank you so much for replying. I really appreciate you giving me the info regarding the lap and hyst as I don't know anyone who has had it done. That's really interesting that it can affect the bowel. I didn't know that.

The consultant yesterday did upset me as he was so blunt and just rushed everything. He wasn't happy when I declined the Mirena but I know people that have put weight on and I also have PCOS.

Thanks again. Xx

[Minnie1128 in reply to applerhino65]

Yes endometriosis can be found attached to the bowel or nodules on the bowel causing IBS type symptoms.

If you have a look at other posts re treatment including a lady called Lindle you will see that hormone injections and the pill are other treatment options as well as the coil - ideally after you have had a lap to diagnose endometriosis as that's the only way to diagnose it. General gyna can miss endometriosis during surgery so look up if your gynae is on the bsge list

bsge.org.uk/centre/

Xx

[applerhino65]

Thank you so much Minnie. Really appreciate all your advice and help. I have looked at lindle's posts. Very informative.

The gyno isn't on bsge list. I think I will have the lap and hope that they will find something and take it from there. xx