Hi all, I have been going through the process of being diagnosed with endometriosis from the age of 16. Now at 24, I don't feel any closer to an answer.
I have been being monitored by a gynaecologist for the past 2 years, he told me (as have numerous of my GPs and Doctors I have seen during trips to A&E) that they suspect it is endometriosis. After nothing showed up on any of my multiple ultrasounds or MRI, his course of action was to prescribe me Ponstan and the pill. When I asked about a laparoscopic surgery he said they would only consider doing this if I was having trouble getting pregnant as it's a risky surgery. But then I come online and see that the surgery is the only way to properly diagnose endo and that although risky, (as are all surgeries) it is common practice and few women have trouble being referred for one.
I can't understand why my gynaecologist is refusing to refer me for surgery. Honestly, he makes me feel like a crazy person who is just dying to have a surgery with the way he tries to defer me from the idea. When in reality all I want to a proper diagnosis so I know what is going on with my body and how I can treat it, and so that when people ask why I have cancelled plans or why I have taken so much time off work or why I've had to sit on the ground in the middle of the street due to pain I can tell them SOMETHING.
If there was another way to get a diagnosis then I'd take it, but there doesn't seem to be currently. I also want to rule out that the pain is coming from something else. I'd hate to find out in a few years that it wasn't endo at all and I've wasted time just taking painkillers when I could've been having treatment.
Has anyone else had trouble with this? What should I do?