Newbie with 101 questions!

Hi all, just signed up to this forum to try to get a better understanding of what has and hasn't worked for others. I've been having pain and pretty much constant bleeding since I had my daughter 6 years ago. Been back and forth to my GP had several scans and had a coil fitted last year which was supposed to help but made things so much worse. I went back to my GP a couple of weeks ago to ask for the coil to be removed and the couldn't find it, so after more scans and more doctors attempting to remove it I have finally seen the gynae consultant today who said he wants to do a hysteroscopy and laperoscopy to remove the coil, take a biopsy and have a good look around to see what's going on in there. I've got mixed feelings, relieved that hopefully things might get better but also scared of the procedures and scared that I might be told there is nothing wrong, I do sometimes feel like I must be crazy and imagining everything when they keep telling me my scans are normal. Has anyone else had these procedures, how did you get on, did it help and how was the recovery afterwards?

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  • Hi and welcome, I know it's scary but a laparoscopy is the only way to diagnose endometreosis, and it sounds like you defo need that coil out,

    I'm awaiting my 3 laparoscopy, to remove overies and endo,

    Are you under a bsge specialist centre or a general gyne,

    Just bear in mind that general gyne often miss endo in certain situations and locations, as endo can be in other areas such as pouch of Douglas, ligaments ect, and gynes often look at your representative system only

    Endometriosis dosnt show up on most scans, except perhaps a MRI, but even that isn't conclusive, mine has never shown up on anything,

    If you gave any questions feel free to ask,

    Xxx

  • Hi Tboag, thank you for your reply. I've been quite lucky my private health care wouldn't cover me because it is a pre existing condition but my GP felt sorry for me and refered me to the private hospital to be treated on the NHS, the consultant I'm under specialises in endo. Did you get immediate relief from the pain once you'd recovered? I'm just so fed up of the pain, bleeding and constant tiredness xx

  • Thats great, is he a bsge specialist, only some say they specialises in endo but havnt actually done the 2 year excision training, that they need to work in a bsge specialist centre,

    Unfortunately I've had a lap with removal if endo and a hysterectomy for adenomyosis and I'm still in pain, I was under a gyne us a private hospital, but I'm now under a bsge specialist centre, and am awaiting another laparoscopy,

  • That's a shame that you're still in pain, it's so horrible. I've had a Google of my consultant and he isn't a bsge specialist. I had the letter with my pre op assessment appointment today which is on 26th August, hopefully I won't have to wait too much longer after that for the op. I was hoping it would cure everything but reading a lot of people's experiences I think I will be lucky if that's the case.

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