Endometriosis UK
34,152 members30,533 posts

Everything takes so long

So, six weeks ago I went to my GP so that he could refer me back to a specialist for severe pains again. I've already had two laparoscopies in the past. It then took four weeks to get a specialists appointment and now two weeks on I don't have a date for my next surgery. I've been in tears at work, had a verbal warning due to my sickness. What's next? Mi can't carry on life like this, I WANT to work, I WANT a normal life. I read so much online about what I should and shouldn't do, eat, exercise etc. Some websites say diet and lifestyle change help, some say it doesn't. In fact I have changed my diet, started eating better etc and the pain has increased. I haven't had my Hotwater bottle out for weeks, until today.

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Hi, Meeshka.

I am very sorry to hear you are suffering. I, too, am suffering from trying to keep my job and deal with Endometriosis while doing my best to keep me healthy.

I started to wonder if we keep doing our best to try to have a normal life by eating and exercising, do we get put back by NHS service and they don't seem to take it serious?

I have been waiting for an excision surgery and it has taken 9 months now to get to the point of having a surgery in 4 weeks time.

However, as I was trying to get a date for the surgery, only to be told that the waiting became longer - another 4 months instead of 4 weeks!

I have now taken a few days off from work for the first time due to Endometeriosis.

We really don't know what to do next.

I can only think of trying to write to everyone who would be relevant to running NHS service.

Hope we don't need to suffer too much! xxx

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Home after my day patient visit for my laparoscopy today (on my birthday). Drugged up to the eyeballs on morphine etc.

The specialist didn't come round after but apparently wants a follow up appointment in 6 weeks. . . . .

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