Endometriosis UK
34,152 members30,533 posts

Everything takes so long

So, six weeks ago I went to my GP so that he could refer me back to a specialist for severe pains again. I've already had two laparoscopies in the past. It then took four weeks to get a specialists appointment and now two weeks on I don't have a date for my next surgery. I've been in tears at work, had a verbal warning due to my sickness. What's next? Mi can't carry on life like this, I WANT to work, I WANT a normal life. I read so much online about what I should and shouldn't do, eat, exercise etc. Some websites say diet and lifestyle change help, some say it doesn't. In fact I have changed my diet, started eating better etc and the pain has increased. I haven't had my Hotwater bottle out for weeks, until today.

2 Replies

Hi, Meeshka.

I am very sorry to hear you are suffering. I, too, am suffering from trying to keep my job and deal with Endometriosis while doing my best to keep me healthy.

I started to wonder if we keep doing our best to try to have a normal life by eating and exercising, do we get put back by NHS service and they don't seem to take it serious?

I have been waiting for an excision surgery and it has taken 9 months now to get to the point of having a surgery in 4 weeks time.

However, as I was trying to get a date for the surgery, only to be told that the waiting became longer - another 4 months instead of 4 weeks!

I have now taken a few days off from work for the first time due to Endometeriosis.

We really don't know what to do next.

I can only think of trying to write to everyone who would be relevant to running NHS service.

Hope we don't need to suffer too much! xxx


Home after my day patient visit for my laparoscopy today (on my birthday). Drugged up to the eyeballs on morphine etc.

The specialist didn't come round after but apparently wants a follow up appointment in 6 weeks. . . . .


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