Dear group, I have read many of your posts and think the support you offer one another is amazing. I would like to take the opportunity to ask you about my case and see if you are able to help as at present I feel quite lost as to the right path to take. I will try and be as brief as possible but am afraid it is a feather long post. I am 40 years old an have been lucky to have 2 children. After suffering most of my adult life with heavy periods, mid cycle pains and one burst ovarian cyst I had been on every birth control pill etc there was to try and then had a coil put in around 3 years ago. I was only diagnosed with endometriosis 2 years ago when admitted to hospital with suspected appendicitis. After the operation I was told I had extensive endometriosis and may need further treatment in the future . My discharge letter stated: abdominal pain likely secondary to endometriosis, areas of endometriosis within the wall of the appendix showing both glandular tissue and stroma. Right ovary appears to be adhered to the bowel and sits in the pod.
My pain continued and began to become more severe on a daily basis, main symptoms are back pain and severe pelvic pain so after a bit of a fight my gp referred me back to gynae who eventually performed a lap to look see in May last year. Unfortunately since my gp had tried to help and put me on the pill in conjunction with my mirena coil to ease my pain and symptoms it had held back the endometriosis so that it was only found on both iliac fossa, this was burnt off by diathermy and I was told they divided some adhesions on my peritoneum. My discharge letter stated:
Bands of one tap adhesions to anterior abdo wall
Muscular adhesions of uterus to anterior abdominal wall, bladder not seen due to thickness of adhesions. Endometriotic deposits on anterior abdo wall in both iliac fossae. Adhesions of tubes to bowel, old endometriosis scarring at sit of adhesions.
After my op I was put into six months of prostap to see how my body felt about menopause, it helped considerably with the very severe pains, however I still was suffering daily symptoms. My consultant has suggested a total hysterectomy would help in my case as prostap helped and this along with removal of adhesions would in his opinion give me a much better quality of life. I guess my question is first is my endometriosis classed as severe? No one has ever said. I know that bsge centres should work on severe but if mine is only classed as mild or moderate would my gynae along with the bowel surgeon be good enough? Secondly he said that he feels much of my pain is now coming from my adhesions so does this mean having these organs removed will free me of that pain? I am at a bsge recognised hospital but under a regular gynae, 20!weeks into a 40 week wait for hysterectomy. I thank you for taking the time to read this message and would appreciate any response or advice you could give me.