Increased pain after horrendous coil fitting

I have been going to my GP for around 6 months now for help with intense lower left abdominal pain, excruciating pain during periods, nausea, fatigue and pain when my bladder is full. After a clear ultrasound and CA125 my GP suggested I get a mirena coil as that would stop my periods and reduce my pain... I went to have my coil fitted last Thursday and it was horrendous. I had local anaesthetic in my cervix but the pain was unbearable. I was shaking, sick and felt like I was going to pass out when they tried to dilate my cervix and tried to fit the cool. The mirena wouldn't fit and after 40minutes of trying they fitted the jaydess coil instead. 3 days on I am still in a lot of pain, I also have a sharp stabbing pain in my lower bowel that comes and goes that I didn't have previously. I feel very upset that the GP suggested the mirena saying it would stop my periods and I've ended up with the jaydess which is unlikely to stop periods and isn't licensed to help with pelvic pain!! I didn't want it for contraception so feel the whole procedure was pointless. I'm really not sure what to do now. I'm still in pain daily, pain with going to the toilet, fatigue and nausea, I've put on weight as I've not been able to go to the gym or do any of my hobbies and that's getting me down too. Please can any one advise me what to do next? I really can't go on like this 😢

6 Replies

  • Hi - I replied to your first post a couple of months ago. I didn't get chance to write the letter templates I was working on as I broke my foot and I've only recently fully got back into things. But you mentioned going private at that time. You have signs of rectovaginal endo and this terrible experience of them not being able to get the mirena in really just adds to those suspicions as it would mean that your cervix is glued to your bowel and a few women have had this same experience. If you imagine a cervix that is fixed at the back with adhesions and therefore incapable of stretching then the pain would be excruciating. Why don't these people see this? Would you have funds of say £200 for a private consultation at either the Edinburgh or Aberdeen centre?

  • Thank you for the reply, I had been considering going private but that is really a last resort. I have recently changed GP practice to a small rural practice and have an appointment with my new GP on Friday, do you have any advise as to what I should say to her? 

  • And I'm sorry to hear about your broken foot! I hope you heal quickly! 

  • Hi - the foot is nearly back to normal now and the great big moon boot just came off!

    Going private to a general gynaecologist will be no different from seeing them on the NHS. You will just get seen quicker and will have to pay for the privilege but they will still only have the basic knowledge. 

    You need to impress on your GP that the gynaecologist you have seen suspects that you have endo on/in the bowel and you have been advised by the Endo UK support group (that is recommended in the NICE guidelines) that you must be referred to a specialist centre in accordance with the RCOG and BSGE guidelines since the surgeon who operates on you must have had at least two years' advanced excision training beyond that of a general gynaecologist.

    Look at my post on the treatment pathway and print it off and copy these: (section 10.3)

  this shows you have the two centres.

    Take this all along with you.

    Also have a read of my posts on rectovaginal endo and the one on endo on the utero sacral ligaments to familiarise yourself with the typical symptoms and write some notes.

    You GP will have to make a case for you to be seen in a centre so can you keep us informed as to how you get on. x

  • Thank  you so much for your help, I will print all these off and take to my GP along with a list of symptoms. I haven't actually seen a gynaecologist yet tho. The dr at the sexual health clinic who fitted the coil said my cervix is tilted to the left, all my pain is on the left and the bowel pain also, would that fit in with revtovaginal endo? Thanks again for all your help, my GP appointment is Friday so I will let you know how I get on X 

  • Yes, I think the posts on RV endo and utero sacral ligament endo will be a bit of a revelation. It sounds as though your cervix is typically glued to your rectum and the left side often predominates because the sigmoid colon enters the pelvis on the left. You could print those off too as they might be useful for your GP because educating doctors is more important than ever in Scotland, Wales and NI since you don't have NHS Choices. x

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